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After MVD surgery Trigeminal Neuralgia: How are you doing?
Brain & Nervous System | Last Active: Sep 22, 2022 | Replies (22)Comment receiving replies
I had two MVDs each one gave me eight months of complete relief but on the eight month the pain would be excruciating with facial spasms that caused me to not be able to speak.
Then I had gamma knife surgery and the pain relief lasted ten months but horrible pain returned with the same, the electric drill and the tics and not being able to speak
A pain pump with the med dilaudid is helping so far it’s been 16 months
The relief is not 100% but it I can live with itkmm
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A year and 3 months ago I had my MVD. I’m living in hell. I’ve been to Mayo Clinic plus many other hospitals and I still haven’t gotten any relief. Every day my incision area jaw and ear Pain is devastating. I have no plan anymore, where to go I want to do. I medicate and it’s still not enough. If I knew this operation was going to turn out like this I would’ve never gotten it.