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@momomouse

Hi all, I just created an account so I can come back later and read through everything. 3-4 years ago I started getting drainage every few days that was difficult to swallow. I never had allergies so I figured it was that. It progressed to last year where I was having issues daily. At some point I realized I could see the mucus at the back of my throat: thick, white, rope-like. I get it periodically through the day now, normally a bit I’m the morning, maybe around 10, then around 2, then always around 5-6, then a couple times in the evening. Now it dries out into large circular clumps, sometimes yellow, or green, or bloody and I can feel it drying out then have to hack and snort until it dislodges and I feel it drop from my adenoids. Sometimes it’s just thick mucus and sometimes it’s dried like a scab. My ENT didn’t believe me about the drainage at first and claimed allergies or acid reflux. Tried treatment and testing for both. He then tried an antibiotic followed immediately by a CT scan. It cleared for a week or two and this the CT was clear. He finally saw it on a scope and saw that it was coming from my adenoids. “Crusted and weeping”. He was very concerned at this point. Tried another antibiotic and a steroid nasal rinse. Very mild relief. He tried to declare me healed when he didn’t see an active drainage event the next time. I kept pushing and insisted on a biopsy (he first suggested it then tried to convince me otherwise the day of the appointment). It showed tissue necrosis due to chronic inflammation and nothing else. No fungal, no viral, no bacterial, no malignancy. I tried prescription strength mucinex and it may or may not help? His suggestion is now adenoidectomy. I am 30, female, very mild allergies (according to testing), wide air passage, normal anatomy, non-smoker, rarely drink, not very active but eat fairly well (have to reduce carbs due to GI enzyme deficiency). 125 pounds, otherwise pretty healthy but history of chronic bronchitis after every cold (probably due to poor sleep hygiene and stress). Rare issues with asthma. Recently diagnosed with sleep apnea. Still have my tonsils, never had issues with them. I have some thyroid cysts/nodules but haven’t grown under observation for a few years. My adenoids are not enlarged, just inflamed.

It keeps progressively getting worse. I often can’t dislodge the mucus plug and end up gagging, dry heaving, coming super close to vomiting. I had to pull of the highway the other day because I couldn’t move my throat muscles without violently gagging. The mucus is incredibly thick and sticky so it sticks to my gag flexes.

I get married at the end of the month and will be spending the day swishing mouth wash to get rid of the mucus smell on my breath. Post wedding, I will select 1 of 2 doctors he recommended for a second opinion.

I work in a very small print shop internal to a business office and live in an 103 yo house but I think these problems first started at my old job and in my old apartment but I don’t want to rule out environmental factors either.

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Replies to "Hi all, I just created an account so I can come back later and read through..."

Welcome, @momomouse. I applaud your persistence in searching for answers.
Does your ENT suspect adult adenoid hypertrophy, also known as enlarged adenoids? This unusual growth of the adenoids usually occurs in children under 5, but can happen to adults rarely. Will you have the adenoidectomy? Or wait for the second opinion?

thanks for posting that you got a dr to "biopsy" it, (i assume you meant they examined the discharge/scab, or did the dr. actually biopsy tissue from your nasal passage?)
i feel for everyone here. i've had this for at least 20 years, and wondered about it for as long. I only found this thread a year ago, and was hopeful to get some shared experience, find some answers. I saw ent today, and after he did the camera in and down the nose, right after i hacked the thing up. I mentioned this web forum, and told him how strange this issue is, etc. .. he had no interest at all. i guess to them they just think it's another regular nasal "snot". To all of us here we know how annoying it is, and as you mentioned when it gets stuck, you gag yourself almost to death trying to dislodge it. 🙁 Also I've lived and worked many different places in the 20 + years I've had this. i thought environmental issue too possibly , and it may still be, but i didn't have much change from place to place. For my case it seems to get better or worse of it's own accord. best wishes to everyone here. maybe some dr someday will have a better approach to this issue and give all of us some clarity on why it happens.

Hi @momomouse, I do understand what you must be going through. I have what seems the exact same thing but only for a couple of months now. Had a bad cough the first time and ended up coughing the plug up and couldn’t believe what I was looking at. Over the next month or 2 it became less and less so I wasn’t too concerned as I thought I was still recovering until last week I got a sore throat and felt so miserable then it came again after hacking and gagging I coughed up a plug. I haven’t been to the doctors yet but I’m so glad I found this forum and I have some back up.
I wonder how you are all going now as these posts are from over 10 years ago. I hope you all found answers and that you might read this and give an update.
Photos with green ruler are from this time and the other 2 photos o are from 2 months ago. 🌻🌻🌻