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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (414)Comment receiving replies
The pharmacy said would call when received the prescription. Guess it is in process but I will not be happy until I know it is shipped. Tomorrow is my dictor appointment so will talk with her about scheduling as would be good not to be down to the wire. It is already Wednesday and need by Friday so still a bit stressful for me. since the numbers have come down with only one month, I am hoping that will be true for this second round! Revlimid makes me so tired but worth it. I just wish I did not have the bone issues as 24/7 I feel the effects of the lesions. Not terribly painful but z sort achingly uncomfortable which is adding to my stress. Maybe with some better weather. Will see if my doctor can schedule as you do so that there is more time for processing the labs. Not sure why some are sent to Mayo but that is what they do!
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Good morning @tml Thought I’d pop in to see how you’re doing today. Did your meds get to you on time for the next round?
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@tml Yep, you have to be your own advocate, and get things set on the timeline needed. Remember, your medical team has more patients than just you, and shuffling things around could result in someone getting set on the sidelines. There is certainly a technique involved in getting your needs met for timeliness. And from what I have experienced, although it may be a pain in the a**, knowing that I had an active hand in getting my treatments taken care of, and being involved, makes it better for me. Of course, I have "time issues" as they say, and would rather have my appointments/prescriptions all set up as much ahead of time as possible, in case there is a need to change things up.
Being actively involved in your care will make you feel better also. Are you journaling this for you peace of mind?
Ginger