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Want to talk about Multiple Myeloma: Anyone else?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (414)
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@tml

Seems what was sent was okay so I should be getting it by Friday. I wasn’t certain what they needed and the myeloma tests are sent to Mayo to process which adds to the time.

I am reading spy novels now although like to read series so the next one is waiting but have finished all the ones in my queue so guess will have to find more or another topic.

A bit sad as got the notice for the bike/barge Amsterdam tulip trip I booked in January 2020 and finally cancelled. Sigh! Fine before I knew I had this but always hoped somehow we could still take! Since so much myeloma damage in the past 4 months, cannot even bike so just as well.

Hoping for some good numbers when those tests come back. Guess I have not really faced up to the actual reality of the myeloma. I know I need to be more positive and try to focus elsewhere but so hard for me. Did the NYT Sunday cross word puzzle! That took a few days! Have yet to try and paint or journal.

That is why I retired later than I should have as it filled up my time and mind!

I guess I did worry for nothing as it did not come down to the wire as I thought it might!!!

I was reading up on transplants again and saw the 100 days of isolation to recover one ‘s immune system!

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Replies to "Seems what was sent was okay so I should be getting it by Friday. I wasn’t..."
Lori, Volunteer Mentor | @loribmt | Apr 5, 2022

Seriously, you’re doing great! You’ve had so many unexpected things tossed at you these past few months with a new diagnosis, new meds, new doctors, medical challenges you didn’t expect to face and abrupt life style changes! I’d say you’re handling this all quite well. But, increasing the positivity level while decreasing the worry level will help even more. ☺️.
Aw, I’m really sad for you with having to cancel that trip to Amsterdam! It sounds fabulous and I’m so sorry you have to miss it this year! But I still see this trip and others in your future. ☺️
Congrats on the NYT Sunday Puzzle. We no longer get a newspaper at our house and working puzzles online or in a book just don’t have the same feel for me. I love the folded paper in my lap and my favorite pen. But I end up with crossword puzzle books just to keep me in the loop. I am addicted to Wordle online though.

Ok, the 100 days of isolation isn’t really total isolation. You’ll pretty much follow what we did during the height of covid. You will need to be cautious with no hugging, smooching grandkids, avoiding crowds, wear a mask, sanitize your hands and surfaces, avoiding freshly tilled soil and no gardening. There will be some precautions with foods that are raw, especially and deli meats are taboo. There is no 3 second rule for dropping something on the floor, brushing off and eating it! But all of this will be addressed with your pre-transplant classes. It’s really not as challenging as it sounds.

My suggestion is to stay off the internet for some of these things about transplants.

Have you read any of Louise Penny’s Inspector Gamache series?

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