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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)Comment receiving replies
Hi @tml I was just thinking about you today and wondering how your weekend went. Some of the test results you’re waiting for can’t always be rushed. I know, waiting is the pits, especially when a prescription is dependent on the outcome. Hopefully the results will be in tomorrow. From @gingerw’s experience with the same drug, it’ll be shipped overnight. So I think they’ll arrive in a time for you. ☺️
I have to share something a fellow transplant cohort of mine, who is in a support group with me, posted this today on Facebook.
“Worry is a total waste of time. It doesn’t change anything. All it does is steal your joy and keep you busy doing nothing.”
It served as positive affirmation for me today. I would like to encourage you to focus on something positive and joyful for the rest of the evening, whether it’s a chick-flick comedy on Netflix, playing a board game, grab a new mystery to read.
You said you’re an avid reader. What’s your favorite genre?
Replies to "Hi @tml I was just thinking about you today and wondering how your weekend went. Some..."
Well the myeloma labs were posted and there is some good news. Numbers are down so hoping with a few more months perhaps another remission opportunity! Yes worrying was wasted!!!
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Seems what was sent was okay so I should be getting it by Friday. I wasn’t certain what they needed and the myeloma tests are sent to Mayo to process which adds to the time.
I am reading spy novels now although like to read series so the next one is waiting but have finished all the ones in my queue so guess will have to find more or another topic.
A bit sad as got the notice for the bike/barge Amsterdam tulip trip I booked in January 2020 and finally cancelled. Sigh! Fine before I knew I had this but always hoped somehow we could still take! Since so much myeloma damage in the past 4 months, cannot even bike so just as well.
Hoping for some good numbers when those tests come back. Guess I have not really faced up to the actual reality of the myeloma. I know I need to be more positive and try to focus elsewhere but so hard for me. Did the NYT Sunday cross word puzzle! That took a few days! Have yet to try and paint or journal.
That is why I retired later than I should have as it filled up my time and mind!
I guess I did worry for nothing as it did not come down to the wire as I thought it might!!!
I was reading up on transplants again and saw the 100 days of isolation to recover one ‘s immune system!