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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Dec 23, 2023 | Replies (136)

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@rwinney

@hrod You're welcome! Regarding my Pregabalin dosing, each of us respond differently to medication. The doseage that works well for one, does not necessarily work well for the next. Some folks may not be able to tolerate the medication at all. Doseage is best discussed with your primary care physician based on your symptoms, health history and tolerance. Pregabalin (Lyrica) and Gabapentin (Neurontin) are well known classes of nerve medication that take time to tweak and find appropriate dosing.

I caution about Tramadol as it is an opiod and can actually enhance allodynia. This is called opiod induced hyperalgesia. Please find more info on opiod induced hyperalgesia here:

https://www.verywellhealth.com/opioid-induced-hyperalgesia-and-allodynia-4149530

One of the best things you can do for yourself is to be aware and have knowledge so you can be your best advocate while managing your health. Do you have family or friend support?

May I ask what you do for positive distraction when things get heavy and you are feeling anxious? Have you explored any self-help tools for calming yourself?

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Replies to "@hrod You're welcome! Regarding my Pregabalin dosing, each of us respond differently to medication. The doseage..."

Thank you very much. I understand everyone responds differently to medication and you have to discuss this with your doctor. I was interested in your dosage of Pregabalin to see if it could possibly work at a lower dose because of my sensitivity to side effects from medication. It seems you have symptoms that are similar to mine. Are you taking a low dose of Pregabalin? I read that for Gabapentin to work on allodynia you have to take in the thousands, which to me would cause too many side effects to make it worthwhile. I am trying to decide on which medication I can try at a lower dose in order to not have to rely on the Tramadol.

Honestly I'm having a hard time distracting myself this winter. It was much easier to do so in the warmer weather.

wwenerowicz: Thank you also for sharing your regimen. It's helpful to hear what others are using to help symptoms. Do these meds help with anxiety also?