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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Aug 30 5:28am | Replies (148)
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@hrod

Hello Rachel,

Thank you for sending the links for information and the video. Very interesting. I will look into this further.
I am having a hard time dealing with my pains. There are so many people with these kinds of symptoms and very few places to turn to. I recently started taking Tramadol very occasionally, which I do not like to take regularly. I'm very anxious about the pain. You say Pregabalin helps you some. This is something I haven't tried before. How much Pregabalin do you take to be able to get some relief?

I also read a few articles about desensitization and am wondering if anyone has had success with this.

I would appreciate also if you could get back to me with your thoughts and also about the Pregabalin.

Thank you again.

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Replies to "Hello Rachel, Thank you for sending the links for information and the video. Very interesting. I..."
wwenerowicz | @wwenerowicz | Apr 2, 2022

I take 450 mg of lyrica and 600 of tramadol daily. Does not completely cover the pain. But it does help. Tramadol is really like Tylenol on steroids, even though it is addictive. The lyrical is an anti seizure med. it apparently interrupts the pain signals.

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Rachel, Volunteer Mentor | @rwinney | Apr 2, 2022

@hrod You're welcome! Regarding my Pregabalin dosing, each of us respond differently to medication. The doseage that works well for one, does not necessarily work well for the next. Some folks may not be able to tolerate the medication at all. Doseage is best discussed with your primary care physician based on your symptoms, health history and tolerance. Pregabalin (Lyrica) and Gabapentin (Neurontin) are well known classes of nerve medication that take time to tweak and find appropriate dosing.

I caution about Tramadol as it is an opiod and can actually enhance allodynia. This is called opiod induced hyperalgesia. Please find more info on opiod induced hyperalgesia here:
https://www.verywellhealth.com/opioid-induced-hyperalgesia-and-allodynia-4149530
One of the best things you can do for yourself is to be aware and have knowledge so you can be your best advocate while managing your health. Do you have family or friend support?

May I ask what you do for positive distraction when things get heavy and you are feeling anxious? Have you explored any self-help tools for calming yourself?

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