Hello @hrod. I am sorry to hear of your burning from allodynia, and fibromyalgia challenges over the years. Winter is challenging for me as well. I have experienced burning also as part of my central sensitization condition. I tried all of the creams and they did not help enough to warrant continued use. Unfortunately, pain stems from the brain which is why all too often conventional medical treatments don't help for things like fibro and central sensitization syndrome. I do take Pregabalin for some assistance, but I still need to manage symptoms beyond. Do you take nerve medication?
I found help at Mayo Clinic's Pain Rehabilitation Center (PRC). This program treats allodynia, fibro, CSS, neuropathy, migraine, and more. I am unaware however of a specific allodynia association. Here is information about Mayo's Pain Rehab Center which is a incredible comprehensive pain rehab program:
- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
The reason doctors do not know how to treat allodynia and other nerve related dysfunctions, is that sadly, it boils down to no medical treatments provide the help we are looking for. It takes self-care, lifestyle changes and self-help with physical, emotional, and behavioral management, and most importantly acceptance.
I'm sorry, I know these may not be the answers you were looking for. I wish it were easier. Maybe someone will chime in with something that has helped them with allodynia, Until then, do you mind watching this video from Mayo Clinic's Dr. Sletten which educates on chronic pain and symptoms?
- https://youtu.be/vJNhdnSK3WQ
Will you please get back to me with your thoughts on what I've presented?
Hello Rachel,
Thank you for sending the links for information and the video. Very interesting. I will look into this further.
I am having a hard time dealing with my pains. There are so many people with these kinds of symptoms and very few places to turn to. I recently started taking Tramadol very occasionally, which I do not like to take regularly. I'm very anxious about the pain. You say Pregabalin helps you some. This is something I haven't tried before. How much Pregabalin do you take to be able to get some relief?
I also read a few articles about desensitization and am wondering if anyone has had success with this.
I would appreciate also if you could get back to me with your thoughts and also about the Pregabalin.
Thank you again.