Replies to Hi Ginger, Wow, SMM morphed into MM in less than a year. Thank you for your…

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Blood Cancers & Disorders | Last Active: Mar 19 9:49pm | Replies (52)

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@mitten

Hi Ginger,
Wow, SMM morphed into MM in less than a year. Thank you for your feedback and I have decided to continue 3 months. I do visits 1-2 times to Dana Farber in Boston, MA and see my local every 3 months. My cell % in my bone marrow biopsy is approaching 10% so I am still in MGUS stage. Thank you for sharing - this is helpful. No other questions I can think about at this time. I will be praying for you.
Mitten

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Replies to "Hi Ginger, Wow, SMM morphed into MM in less than a year. Thank you for your..."

Ginger, Volunteer Mentor | @gingerw | Apr 1, 2022

@mitten Please understand that less than 10% of SMM patients evolve in to multiple myeloma in the first year. Known for being different, guess I had to jump on the bandwagon ;)) Don't think of it in your future.

Remember, each person has their own journey. Response to a medication, level of disease, additional health concerns, treatment options, etc. all play a part. Here on Mayo Clinic Connect, we get to share our experiences and offer support to everyone. Anytime you have a question or concern, feel free to reach out!

Here is a link from Mayo Clinic about multiple myeloma: https://www.mayoclinic.org/diseases-conditions/multiple-myeloma/symptoms-causes/syc-20353378
And here is a link to the International Myeloma Foundation, which has a wonderful resource base. Very easy to get lost "down the rabbit hole". Under the "What is Multiple Myeloma" tab, go to "Newly Diagnosed" which will give you information on different levels. https://www.myeloma.org
Ginger

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