1. < Neuropathy

Ear Tinnitus and Pain with Neuropathy

Posted by cwallen9 @cwallen9, Jan 29, 2019

Does anyone have severe tinnitus and ear pain with their neuropathy? I have small fiber and autonomic neuropathy and I have been getting severe tinnitus (roaring and high pitch noise) and a feeling of pressure and pain for the last month. I am wondering if the neuropathy and/or medications are causing it. I am on gabopentin, cymbalta, and NSAIDS.

Interested in more discussions like this? Go to the Neuropathy Support Group.

willows | @willows | Apr 1, 2022
In reply to @gator123 "Gabapentin will do it I was in the hospital one time I already have tinnitus with..." + (show)
@gator123

Gabapentin will do it I was in the hospital one time I already have tinnitus with leg pain give me gabapentin for my leg pain and my tinnitus went through the roof

Jump to this post

I take Pregablin (Lyrica) without any worsening of my tinnitus. Not sure if it has a similar use to Gabapentin but it might be ok for you.

REPLY
willows | @willows | Apr 1, 2022
In reply to @gator123 "How do you get neuropathy from tinnitus" + (show)
@gator123

How do you get neuropathy from tinnitus

Jump to this post

Good question. Anyone know the answer?

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Apr 1, 2022
In reply to @willows "Good question. Anyone know the answer?" + (show)
@willows

Good question. Anyone know the answer?

Jump to this post

I'm thinking tinnitus may just be an early symptom and not a cause.

Tinnitus as a Presenting Symptom in Secondary Neuropathy: a Case Report: https://pubmed.ncbi.nlm.nih.gov/10753336/

REPLY
jimmy 370 | @jimmy370 | Apr 5, 2022

Yes I have the same thing! And nothing works for me! It got me ready to jump off the bridge 😞

REPLY
frattmaa | @frattmaa | Apr 6, 2022

I thought I was the only person on the planet who has small fiber sensory neuropathy and autonomic neuropathy. My ears ringing is driving me nuts. I’ve had this 13 years and am now on hospice. The autonomic neuropathy had killed the nerves in my heart causing many life threatening problems. There no longer is any treatment to help or reverse the damage. It’s also attacked my eye site( pupils won’t constrict or dilate correctly) it’s also attacking my kidneys. This has got to be one of the worse diseases. I have never heard of anyone else with the same diagnosis.

REPLY
sunshine111 | @sunshine111 | Apr 7, 2022

Not sure of my diagnosis, but I am very sorry that you are going through this. My heart goes out to you. Keep a good thought and please do know that others do care about you and send love. Bless you.

REPLY
cantab | @cantab | Apr 9, 2022
In reply to @willows "Good question. Anyone know the answer?" + (show)
@willows

Good question. Anyone know the answer?

Jump to this post

You probably get tinnitus from neuropathy, not the other way around!

REPLY
jam6503 | @jam6503 | Apr 10, 2022
In reply to @teetee7 "Yes, I have been battling tinnitus (loud and high pitched "locust" sounds in both ears) with..." + (show)
@teetee7

Yes, I have been battling tinnitus (loud and high pitched "locust" sounds in both ears) with occasional ear pain for over a year now. I, too, have Small Fiber Neuropathy and Autonomic Neuropathy. My hearing and ear health tests have checked out fine. I take Gabapentin, NSAIDS, midodrine (for Orthostatic Hypotension), and a couple of other meds as a result of breaking my thoracic spine in 7 places, 10 years ago. Those meds don't have tinnitus listed as a side effect. My tinnitus started, the same time I started to experience symptoms of my Autonomic Neuropathy which was just over a year ago. (My Neurologist had me undergo all of the testing at the Mayo for Autonomic Neuropathy/Dysfunction - having a concrete diagnosis in November). He wants me to see a specific ear specialist, as there may be something we can put in our ears to take away the very annoying tinnitus sounds. I haven't made that appointment yet.

Jump to this post

Hello, did you ever find out what was causing your tinnitus with neuropathy. I also have CIAP with really bad high high pitched tinnitus

REPLY
tikvah4j | @tikvah4j | Aug 4, 2022

I have the same diagnosis. I do have Tinnitus. I am not on those medications. I use a smart hearing aide and put it on restaurant mode. It helps me focus on conversation and helps make the tinnitus as white noise/ background. I sleep listening to YouTube gentle rain/dark screen (dark screen turns off light)

REPLY
amyj2022 | @amyj2022 | Aug 5, 2022

Tinnitus (ringing in the ears) is a common side effect that affects about 1-10% of users and can range from mild to severe. I could not take Cymbalta or Lyrica.

REPLY
View MoreView Less
Please sign in or register to post a reply.