← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@stephanierp

Hello!
After my transplant 2 years ago in February, my hair came out in handfuls, much like it did after childbirth but more intense. My hair dresser recommended Active for Women Shampoo and Conditioner. Within a week, I noticed my hair was not coming out in my hands as I styled it, which was huge. Hairdresser said that time after time, she hears exactly what I reported - it slows/stops hair loss and encourages new growth. It's about $50 on Amazon. Not cheep but helped. I also took Biotin each night. Hair stayed thin but did begin regrowing. I had this layer of 1" hair sprouting straight up in the air for several months. Very attractive:)

This past September, I developed acute Pancreatitis and was hospitalized for 5 days - highly painful, would not recommend it. We suspected drug related cause, as I don't drink alcohol and did not have gallstones (2 leading causes). So we changed Tacrolimus meds to Cyclosporine. So now I take Cyclosporine and Myfortic. I was able to wean off of Prednisone. Cyclosporine has its own side-effects, but my body seems to prefer it. I feel better overall.

My hair is back to being pretty thick again - 80-90% of what it was. I do not know if hair loss was just the trauma of the initial transplant and nephrectomy surgery, and now my body has recovered. If the Active caused the stop of hair loss and created new growth. Or if it was changing from Tacrilimus to Cyclosporine. Perhaps a combination of all. My hairdresser said that when the body experiences trauma, it immediately sheds hair, and pools its resources to healing. Then if trauma continues, it stops hair growth, because hair is not important to survival. Transplants are miraculous, but also traumatic for our bodies, "What is this? And who does it belong to?"

I noticed people talking about food on this feed. So I will share, I go out to eat often. If place looks crowded, I go elsewhere. I eat salads and raw veggies all the time. Just careful about where, if I am eating out. And make sure to rinse, if eating them at home. I have not had any problems on either front.

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Replies to "Hello! After my transplant 2 years ago in February, my hair came out in handfuls, much..."

@stephanierp 😊 Hello and thank you for all your excellent comments and advice! I am so sorry to hear about your acute pancreatitis and hospitalization. On my last abdominal ultrasound it said that I had "sludge" in my gallbladder. That's the first time an ultrasound showed sludge iny gallbladder and I am concerned it may be precursor to gallstones, pancreatitis, etc. I never had any gallbladder problems before so I wonder if your pancreatitis and my "sludge" are just possible side effects of Tac. Anyway, I am very happy to hear you are better from your pancreatitis and are now on Cyclosporine...and your hair is doing 80-90% better!!
I noticed you are on Myfortic instead of Cellcept. Did you have an adverse reaction or problem with Cellcept? Or did you start on Myfortic?
Also, thank you for sharing that you go out to restaurants (and leave when crowded!). I am hopeful to be living your lifestyle in the near future. I am still spooked about covid, food borne illnesses, lots of tourists, and untrained kitchen help. What part of the country do you live? I live in Florida and our restaurants are always crowded with tourists during season.