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Hair loss after transplant, probably Tacrolimus: Anyone change meds?
Transplants | Last Active: Jun 11 10:36pm | Replies (179)Comment receiving replies
@hello1234 . Many thanks for the congrats.
We have started to venture out for late lunches and early dinners at outdoor locations here in the Sonoran Desert/Tucson. That said we do mask everywhere. I am not totally comfortable returning to activity but upon advice from Mayo in response to my query about attending my daughter's wedding, "What is the point of being alive if you are not living."
The wedding was a successful small outdoor affair. Everyone was vaccinated per demand of my daughter. The real loss for me due to tacrolimus is cartilage in both hips. Heading to Mayo on April 11 to replace the right hip and hopefully address the left hip later this summer. Still I am averaging 40,000 sometimes painful steps per day.
Best always,
s!
Replies to "@hello1234 . Many thanks for the congrats. We have started to venture out for late lunches..."
@scottij, I am especially happy that you were able to enjoy your daughters wedding! Our son was married 4 months after my transplant in 2009. I didn't have the Covid precautions to contend with, but I do remember how concerned my son and bride were about me and the food preps. Due to my pre transplant conditions, I was skin and bones, and very weak. My transplant team okayed moving my 4 month post transplant visit to 5 months because of the wedding.
Scott, What are you doing to rack up an average of 40,000 steps per day?
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@scottij Your daughter's outside wedding sounds super lovely and I am so happy to hear that that your Mayo Transplant Team gave you an enthusiastic green light to attend!! In the coming weeks I think I will try your "late lunch" outside idea as one of my first adventures into the world of restaurants. I live in Florida so once season passes, the restaurants should be fairly empty of tourists.
I was not aware that Tacronlimis could have a negative effect on cartilage. It sounds like you are an avid walker with 40,000 steps a day as your average! All I can say is WOW and then apologize for being so lazy. I applaud myself with three times around my neighborhood! 😊 Please keep us posted on your upcoming surgery. I am sure you are looking forward to getting rid of the pain as soon as possible!
Can I ask you an unrelated question? I just posted a question about shaving with a disposable razor instead of using an electric razor. Do you think it's safe to use a new disposable razor each day or do I need to stick with an electric shaver to avoid any possibility of a nick?