1. < Breast Cancer

Zometa infusions to help prevent bone loss from cancer treatments

Posted by trixie1313 @trixie1313, Jun 13, 2019

Has anyone had Zometa infusions to help combat the effects of aromatase inhibitors (bone loss). I have osteoporosis of my spine and osteopenia of the hip and am told I need this to prevent future fractures.

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mdr3 | @mdr3 | Mar 27, 2022
In reply to @lcr2017 "Yes. He said in addition to bone building, it also helps with metastasis to bones. They..." + (show)
@lcr2017

Yes. He said in addition to bone building, it also helps with metastasis to bones. They give Prolia to patients with bone cancer. It’s a notch better than Reclast which does the same. Last bone density I was osteopenia instead of osteoporosis which was 2 years ago. My insurance only covers the scan whenever you need it if it’s osteoporosis haha, so I couldn’t have an annual one! This one in May, we’ll see if I am out of that too. Prolia can have side effects but I don’t know since the anastozole can have similar effects. I hope they let me weigh in!

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Creates an inhospitable environment for tumors. I'll share the link from the NIH when I have time

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gillooly | @gillooly | Mar 27, 2022
In reply to @callalloo "I asked about the anastrozole dosage as well and didn't get an answer. But from what..." + (show)
@callalloo

I asked about the anastrozole dosage as well and didn't get an answer. But from what I've read here and elsewhere some doctors are OK with patients taking a lesser dose or less frequently than daily. Maybe it's similar to the story of lumpectomies or radiation. First go with a mega approach like mastectomy or lots of radiation and, over time, experiment with a gentler protocol?

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I will ask my oncologist about lowering the dosage of Anastrzole before taking a break from the drug entirely.

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gillooly | @gillooly | Mar 27, 2022
In reply to @sequoia "When I insisted to have my estrogen level checked my 1st oncologist was flippant about it..." + (show)
@sequoia

When I insisted to have my estrogen level checked my 1st oncologist was flippant about it but ordered the blood test. The result came back <10. 🤷🏼‍♀️ He said that was good! I believe he said ‘normal’ was like 35 My thinking is they prs robe Anastrazole as a One Size fits all. Someone that has Stage 4 cancer vs Stage 1. Same dose. 200lb person vs 130 lb person. Same dose. Does not seem right. And the oncologists don’t seem to be too concerned about the bone effects from Anastrazole. We must all remain diligent in advocating for our own health. Be Proactive. Question our doctors.

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I weight approximately 106 lbs and never had a prescription drug adjusted based on my size. As you say that does not seem right. It goes against common sense and what can I do but trust the doctor.

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sequoia | @sequoia | Mar 27, 2022
In reply to @mjay "It’s my understanding vibration plates at the correct vibration speed and hertz and amplitude have been..." + (show)
@mjay

It’s my understanding vibration plates at the correct vibration speed and hertz and amplitude have been very successful in treating osteoporosis. 10 mins a day is the recommendation at 30 hz and lower amplitudes to help stimulate bone growth. Check out Margie Bissinger’s website.

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Hey mjay! The vibration plates are an interesting concept. I’ll be following & researching. Thank you. We must advocate for ourselves. No one knows our body as well as we do ourselves. One pill does not fit all.

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callalloo | @callalloo | Mar 27, 2022
In reply to @pbnew "Just a couple things. It is my understanding that calcium is no longer recommended for bone..." + (show)
@pbnew

Just a couple things. It is my understanding that calcium is no longer recommended for bone health. All dairy fuels the growth of cancer. You can read about the original experiment that proves this in The China Study by T. Colin Campbell. We need a medicine and supplements fact check website!

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For what it's worth, my doctors still recommend calcium/vitamin K2/vitamin D3 supplements and review those blood levels along with phosphorus and magnesium. I take the same formula as my female cardiologist. Having said that, they also recommend adding a lot of calcium-rich plant-based foods to the diet. (They were all underwhelmed by my own self-designed Ice Cream for Calcium and Strong Bones! protocol.) Some of the drugs for osteoporosis though might have differing recommendations. Calcium levels seem to be a moving target in current medicine so I don't know where medical consensus will finally agree.

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windyshores | @windyshores | Mar 28, 2022
In reply to @gillooly "I will ask my oncologist about lowering the dosage of Anastrzole before taking a break from..." + (show)
@gillooly

I will ask my oncologist about lowering the dosage of Anastrzole before taking a break from the drug entirely.

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My oncologist okayed a half dose, or, rather, alternate days since it is hard to split Femara. I noted previously here that the Femara drug insert states that a study showed 20% of the usual dose is effective. The problem is, "effective" means that it succeeded in affecting estrogen production in the adrenals, so you would still have the effects of estrogen depletion.

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pbnew | @pbnew | Mar 28, 2022
In reply to @callalloo "Thanks, mjay! I'd not heard of this approach until I started reading the posts on here..." + (show)
@callalloo

Thanks, mjay! I'd not heard of this approach until I started reading the posts on here and think it sounds fascinating. I'll do any non-drug thing to stave off bone loss and this looks worth looking into.

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A great explanation of vibrations for bone health. Watch the videos.
https://melioguide.com/osteoporosis-exercise-equipment/whole-body-vibration-therapy/

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eku | @eku | Mar 29, 2022
In reply to @pbnew "Just a couple things. It is my understanding that calcium is no longer recommended for bone..." + (show)
@pbnew

Just a couple things. It is my understanding that calcium is no longer recommended for bone health. All dairy fuels the growth of cancer. You can read about the original experiment that proves this in The China Study by T. Colin Campbell. We need a medicine and supplements fact check website!

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It's not a fact check website but I use Sloan Kettering's Integrative Medicine website to read about herbs/supplements etc. Here's what they have on calcium: https://www.mskcc.org/cancer-care/integrative-medicine/herbs/calcium
I believe there's also an app.

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1 reply
pbnew | @pbnew | Mar 29, 2022
In reply to @eku "It's not a fact check website but I use Sloan Kettering's Integrative Medicine website to read..." + (show)
@eku

It's not a fact check website but I use Sloan Kettering's Integrative Medicine website to read about herbs/supplements etc. Here's what they have on calcium: https://www.mskcc.org/cancer-care/integrative-medicine/herbs/calcium
I believe there's also an app.

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Thank you. My experience so far is that hospitals are not up to date on proper nutrition. Doctors get little to no education on nutrition.

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omega20 | @omega20 | Mar 29, 2022
In reply to @callalloo "I'm posting this because so many of us are taking vitamin D3 along with calcium and..." + (show)
@callalloo

I'm posting this because so many of us are taking vitamin D3 along with calcium and K2 and the study is from 2021 so recent.

"1,25-Dihydroxycholecalciferol, the hormonally active vitamin D3 metabolite, is known to exhibit therapeutic effects against breast cancer, mainly by lowering the expression of estrogen receptors and aromatase activity."

To read the study, net search the title"Vitamin D Compounds PRI-2191 and PRI-2205 Enhance Anastrozole Activity in Human Breast Cancer Models"

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Where can one buy the K2 (I already take D3 - New Chapter Bone Strength)

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