← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@jennifer0726

@hello1234 Thank you for your kind words. We both had pandemic transplants. 🙂
The Norovirus was likely from delivered pizza-formerly safe-but found out later was circulating in community. We thought at first it was food poisoning. My son and I became sick at exact same time next morning. He got better in about a day-but not me. Mine morphed into C. Diff which is far more dangerous to us post TX people. I had to give a sample to find out what was causing my symptoms. I probably should have gone to ER-but did not know how to with such extreme symptoms. Plus Omicron was in full swing at that time. I was lucky to recover at home-often transplant recipients end up in the hospital with C. Diff. Thankfully I was able to get Evusheld a couple weeks later, as previously I had zero antibodies to Covid even though I was vaccinated and boosted. Life with transplant is not exactly smooth sailing, but still so thankful! ❤️

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Replies to "@hello1234 Thank you for your kind words. We both had pandemic transplants. :) The Norovirus was..."

Oh, and I take 750 mg am/500 mg pm Cellcept.

@jennifer0726 Your story about delivered pizza is the reason my family calls me "overly neurotic" about food safety. Before my transplant, I literally ate almost all of my meals at restaurants. On the way to work, I stopped for breakfast, at lunch I would go out with my girlfriends at work and at dinner I would go out. Since my transplant, I have not eaten one meal out and I really miss it.... but I am scared of unsanitary conditions in the kitchen and unwashed hands making the meals now that restaurants are so desperate for help (inexperienced and untrained in the basics). Do you ever eat out or get take out now? If so, what do you order and where do you go? .... Or are you too scared to eat out like me? You are correct that there are definitely challenges being immune suppressed, but we are both super grateful!! ❤