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← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?
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Hair loss after transplant, probably Tacrolimus: Anyone change meds?
Transplants | Last Active: Jun 11 10:36pm | Replies (179)Comment receiving replies
Hi @hello1234,
My transplant and bilateral nephrectomy for PKD was 12/7/20, so I am a bit over 1 year post. My Tacrolimus was just reduced to 2 mg am and 1 mg pm. I was very sick with Noro Virus and C. Diff mid February. I am much better, but need to revert to toast and rice off and on. Thankfully, I work from home now! I thought I was losing a bit of hair right before TX, but nothing like after. I avoided dialysis by getting a preemptive living donor transplant, but my function was getting very low. I hope your surgery goes well! It’s wonderful you don’t need it anyone!
Replies to "Hi @hello1234, My transplant and bilateral nephrectomy for PKD was 12/7/20, so I am a bit..."
nitazoxanide saved my life with losing 30 pounds after noro for 30 days and catching covid from the hospital. I know am struggling bas from neuro issues noro/covid. I am JC positive and just had a 7t MRI and lumbar Monday.
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@jennifer0726 Congratulations on your pre-emptive transplant in 2020! My transplant was July 2020. I got in the habit of taking my 500mg bid Cellcept and Tacronlimis dosage with food. I am pretty sure if I took the Tac on an empty stomach my dosage would be closer to your low dose. Do you also take 500mg or 1,000mg bid Cellcept with your Tacronlimis?
I was surprised to hear you had Norovirus since I always think of that as the "Cruise Ship" virus. How did you get your Norovirus? I am happy to hear you are on the mend with only an occasional return of your symptoms. I heard that virus takes a while to completely resolve but in time it does, which is the good news. Also, I am happy that you are working from home rather than going into an office. Much safer.
Thank you so much for sharing your experience with me!