← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@hello1234

Hi @jennifer0726 and @mollyv 😊 You both definitely gave me some hope....THANK YOU BOTH! I was told that Tacronlimis has hair loss as a definite side effect but I also think you are correct that the trauma of major surgery may contribute too. How many years post transplant are you and what dosage of Tacronlimis do you take? I take 6mg Envarsus XR once a day long-acting and it will be two years in July. I am getting ready for surgery to ligate (shut off) my hemodialysis fistula in two weeks so I think that stress may also be contributing to my significant hair loss. I am not looking forward to surgery of any kind. I am hopeful that my hair loss is not permanent hair loss because I can see my scalp in the front of my head very clearly. Thank you again for letting me know your experience with hair loss. You were both super helpful in providing me a reason to be optimistic.
Jen, how are you feeling since your illness in February. Are you feeling better now?

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Replies to "Hi @jennifer0726 and @mollyv 😊 You both definitely gave me some hope....THANK YOU BOTH! I was..."

Hi @hello1234,
My transplant and bilateral nephrectomy for PKD was 12/7/20, so I am a bit over 1 year post. My Tacrolimus was just reduced to 2 mg am and 1 mg pm. I was very sick with Noro Virus and C. Diff mid February. I am much better, but need to revert to toast and rice off and on. Thankfully, I work from home now! I thought I was losing a bit of hair right before TX, but nothing like after. I avoided dialysis by getting a preemptive living donor transplant, but my function was getting very low. I hope your surgery goes well! It’s wonderful you don’t need it anyone!