Anyone taken Evenity (romosozumab) for Osteoporosis?

I just completed a full year on Evenity. My scan showed enough improvement so that I am in the osteopenia range instead of osteoporosis. I have seen two rheumatologists, both of whom suggest following up with Prolia in order to hold on to the gains. I am reluctant to start Prolia and commit to being on it for the rest of my life. I am 60.

@elisbethv how were your side effects on Evenity? Excellent progress! I'm in the other boat—have been on Prolia for years (no side effects), now I have to change—Evenity was suggested and Reclast, which I had a bad reaction to 12 yrs ago when I took it. Just came from a 2nd opinion consult (another Endo, I love mine but... Completely different approach and drugs—Fosamax—said she's "old school". I'm 66 and if I could take Prolia for the rest of my life I'd do it in a heartbeat.

I took Fosomax for 3 years. My bone density continued to decrease. I had no side effects from Evenity aside from soreness and redness at the injection site. Why do you need to stop Prolia? I am meticulous about my diet. Although I eat predominantly a plant based diet, I do get a good deal of calcium from foods. I take vitamin D but no calcium supplements. I exercise quite a bit daily, including spine strengthening exercises. Also, I am looking into OsteoStrong.

New to this conversation about Evenity and Prolia. My T scores have me at 15% for a fracture. Scary to hear but was told Evenity can increase my bone mass 18% in a year and then Prolia for as long as I live. I’m soon to be 75 and have a family history of osteoporosis. Tried all the drugs leading up to these shots and couldn’t handle any of them. To do nothing now is not an option. I am very scared but also hopeful that these shots will keep me upright and out of a wheelchair in my 80’s. My first shot appointment is next week. I would like to document my experience here in the hopes it will help others, like myself, to decide what’s best for them. I’m healthy with no heart issues and never had a fracture. I take no meds and am grateful for my good health…other than my bad bones. I’m nervous, scared, and anxious to get this bone building started. Maybe it can help my golf game. Stay tuned…

Greetings @maryanneelizabeth, and welcome to Connect. You sound like a most healthy 75-year-old and I understand your concerns about Osteoporosis. I just turned 80 this month and am caught up in the confusion of what is next. I was on injections from Tymlos for two years and then transitioned to Prolia. Evenity certainly is the newest medication and has the aility to build bone and prevent reabsorption. I am very allergic to all of the bisphosphonates which doesn't leave many choices.

I am glad you want to document your experience with Connect. So many will benefit from finding your story. I understand your fear. And I must say I miss playing golf. Shoulder surgery sort of eliminated that option. Just like you, I am struggling to stay ahead of the aging game and remain upright and waking.

So great to meet you. Please let me know how next weeks appointment goes.

May you have a life of comfort, ease and happiness.
Chris

Thank you for sharing.... sounds like you will have some followers, I will be one as I expect to start Evenity within the next two months. Wishing you the best!

@elisabethv 6/5/21 I tripped over a bag of potting soil and went into a wood pallet we store logs on and concrete garage floor. Broke 6 (L) ribs, I think there was an oversight probably 7, as it showed up out of the blue on another x-ray taken in 11/21. It was taken because I felt more pain than usual, turns out 1 broke another. No fall, but that's a total of 8. My Endo wants me on something stronger for bone building. I eat well, take D3 and like you try and get calcium from foods but use 600 mg supplement instead of 1200. Going to a physiologist Monday who will get me started with PT. Ribs are brutally painful to break and 2 were acute. Everything involves moving your torso, so exercise went out the door last June. I'm 117 lbs, in good shape until this happened.

Hi @maryanneelizabeth I'm on that Evenity fence and have to med a med decision very soon after being on Prolia for so many years (no side effects for me on Prolia). Like you nervous, scared, anxious but I need to do this....I fractured this past summer and am still suffering. Ribs. I'm staying tuned all around. Best wishes and sending good thoughts your way.

I just had Evenity injection #3. So far mild side effects such as headache, fatigue and sore arms. I’m 71 and fractured my spine last year in a fall on rocks. I too was nervous, and still am, about Evenity side effects but believe it’s worth it if I can build stronger bones. I joke that at the end of the year I will either be 6 feet tall or dead 🤓. I’m only 5’3” now, having lost over 2 inches.