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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@mike365

Hi, I am a 67 year old guy diagnosed with Small Fibre Neuropathy 5 years ago, with burning soles of my feet 24/7 worse at night. I now limit my time on my feet to 5.30am to about 1.00pm and never wear shoes or even socks in an effort to limit the pain which always increases after 4.00pm or so. Have been on Pregabalin 150mg morning and night for over 4 1/2 years and tolerate the side effects because I'd rather not take an opioid.
I first experienced burning on the soles of my feet after work around 6pm, and this was for about 7 years before the pain suddenly escalated to unbearable over just 4 days at the end of 2016, never to return to those early levels.

I have experienced some night sweats but whether it's from SFN or something else, I can't say. I can relate to loss of balance, I tend to crash into furniture as I walk past, or bang my hand against things and cause a bruise. Other things like somnolence, fatigue, depressed mood, sleep deprivation, and memory depletion I put down to the combination of Pregabalin my hypertension medication and the whole SFN experience causing me to have to retire from my career 5 years early, change from an active outdoor life to a sedentary indoor one has taken a toll on me, physically and mentally. I am fortunate to have a loving, supportive wife, children and grandchildren to keep me going. This is my first post ever, and probably too long, but is there anyone else missing sleep due to the night time pain?

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Replies to "Hi, I am a 67 year old guy diagnosed with Small Fibre Neuropathy 5 years ago,..."

Welcome @mike365, I know it has to be difficult when the pain keeps you from getting the sleep you really need. I am wondering if you and @sueholdenf might find the following discussions helpful.

-- Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/
-- Sponge Feet, Tingling and Burning: What can help me to get sleep?: https://connect.mayoclinic.org/discussion/sponge-feet/
-- Burning legs at night. Could something else be causing it?: https://connect.mayoclinic.org/discussion/burning-legs-at-night-could-something-else-be-causing-it/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

The Foundation for Peripheral Neuropathy has some helpful information on managing and coping with neuropathy that might be helpful - https://www.foundationforpn.org/living-well/lifestyle/managing-peripheral-neuropathy/

Have you done any research into alternative or complementary therapies?