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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (329)Comment receiving replies
Welcome Theresa. I'm confident that fellow SMZL'ers like @scsimpson @waltera @kayak4me @juiceylucy @reneemp @stanleykent @cdwilm27 will join me in welcoming you to the group.
Here is a paper from 2018, a follow up to a 2007 study that may interest you.
- Rituximab monotherapy in splenic marginal zone lymphoma: prolonged responses and potential benefit from maintenance https://ashpublications.org/blood/article/132/6/666/39401/Rituximab-monotherapy-in-splenic-marginal-zone
Theresa, I can understand your reluctance to start medication, especially one that has side effects like rituximab. Have you spoken to your oncologist about the pros and cons of delaying treatment? Might getting a second opinion at Mayo Clinic be an option for you?
What are the activities that bring you joy?
Replies to "Welcome Theresa. I'm confident that fellow SMZL'ers like @scsimpson @waltera @kayak4me @juiceylucy @reneemp @stanleykent @cdwilm27 will..."
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thank you for the paper, it was very encouraging about treatment. I am now due back for repeat studies in 6 months and during that time I hope to settle on a second opinion professional. I am certainly considering the Mayo Clinic. My local oncologist has put the ball in my court at the present. I am slowly developing a self care routine with activity and connections that increase a sense of well-being, but I'm still trying new things. It's a balancing act between denial and obsession I'm getting better at.