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DiscussionPhrenic Nerve damage and paralyzed diaphragm: Anyone else have this?
Lung Health | Last Active: Jul 10 3:56pm | Replies (198)Comment receiving replies
Replies to "Thanks Nancy, will look into the group though I swore off Facebook a few years ago..."
@firefighter66. Did you read a copy of the report of your SNIFF test? I read the results of mine, along with the results of the pulmonary function test evaluating how my lungs were functioning and x-rays, on my portal account at the medical center where I had the tests done. Your report should state pretty clearly if there was movement of your diaphragm, ie if it is paralyzed. In 74 years I never had anything to do with facebook because I didn't see any value to it and thought it was a real waste of time. I totally changed my opinion after joining facebook to join the Paralyzed Diaphragm Group. I've learned so much from the 900 people from around the country, and world, actually, on it who have paralyzed diaphragms, including suggestions and recommendations of doctors they have worked with successfully. If you're looking for a doctor, you might mention it in a post, say where you live, and ask for recommendations. Most people in the group are totally frustrated with doctors who don't know anything about this condition and have become their own best advocates to find out about it and then really push to get what they need to deal with it. It sounds as though you have a huge hurdle to overcome, ie workman's comp, that I'm certainly glad I didn't have to deal with!!!
P.S. As I understand it, time IS an issue if you want to consider having a nerve graft. I think it has to be done within a certain time period after the phrenic nerve was damaged. I think you could probably contact Dr. Kaufman's office to see if you would qualify for a nerve graft if you were interested in that and find out the particulars, just so you would know.
Anyway, please know you aren't alone in trying to figure all this out. It can be a little overwhelming, as I well know.