← Return to Want to talk about Multiple Myeloma: Anyone else?
DiscussionWant to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (414)Comment receiving replies
Replies to "Wow! Great pictures! Sweet! Did you have the transplant? I see you are on maintenance so..."
Thank you! And welcome to Mayo Connect! The online support groups have helped me so much, since diagnosis. Both with shared information, and support! It will be 3 years in June, since my official diagnosis. I remember how overwhelmed I was at the beginning. MM is such a complicated cancer. And yes! I had an Auto SCT in June, 2020. In Sept., 2020, at the 100 day post SCT recheck, I had reached Very Good Partial Response. Then, in June, 2021, I was told I was in Complete Response. However, I still have had several Positive Monoclonal Protein blood tests since then. I have been on Pomalyst for maintainance, since Oct. 2020. It is keeping the MM down, and I have no new lytic bone lesions. So it is still good news. I am unable to work, and am on disability. Fatigue, bone, joint, and muscle pain are my biggest issues. And depression comes and goes. My kidney function is ok, on recheck yesterday. Thank goodness! But there was blood in my urine. My iron level was low, as well. So, waiting on MD to call. My husband, family, Grandchildren, and furbabies are what keep me going, and bring such joy! I have found that if I have something to look forward to, and set small goals, I get feel better overall.