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Polymyalgia Rheumatica treatment options
Polymyalgia Rheumatica (PMR) | Last Active: Aug 30, 2023 | Replies (14)Comment receiving replies
hi, my name is Joni and I have had polymyalgia rheumatica for over 6 years. I am on a low dose (5 mg) of prednisone, but even with slow tapering, I cannot be painfree without it. I have failed tapering for several years. I refuse to take any other medication, as I have developed osteoarthritis and thin skin (resulting in
sever bruising very easily. All from the prednisone. It is very disturbing that most people get well after 2-3 years, but I have not. I will be 70 years old, and otherwise am well. We travel frequently and I still work
perdiem in nursing at a nearby hospital. Would like to hear from you.
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I am 57 years old and have had PMR for 2 years now. Started on 20 mg. of prednisone initially and tapered down to over the 2 years to 1 mg. but the symptoms are back and my blood work and inflammatory markers are all elevated to the same level as when I was first diagnosed. I refuse to back up on prednisone dosage so I supplement with Aleve but I am always in pain, 24/7. It seems like whenever I drop the dosage the symptoms flare up. I am beginning to think prednisone is addictive as the tapering off is as bad as the disease itself.
Not sure what to do next and my Dr. doesn't seem to know either. I am going to try to take a yoga class to see if I can get some relief.