@emil, I want to welcome you to Mayo Connect. I see that you have recently joined in Dec. I am happy that you have posted in the transplant discussion, and especially happy to meet you, and learn that you, too, are a SLK transplant recipient! I haven't met many others. Have you?
I like what you said about your worst day post transplant still beats your best day with ESLD and kidney failure. I have, and still, say the same thing.
I needed a liver for PSC (Primary Sclerosing Cholangitis) and then developed acute kidney failure. I was on the waiting list for a liver in Kentucky, but had to be inactivated from the transplant list because attempts to get a biopsy and diagnosis for bile duct cancer were unsuccessful. I was scheduled for an appointment at Mayo to get a diagnosis and then return home. But my kidneys failed and ended up in ICU in critical condition with emergency dialysis. After 5 days I was flown from ICU to Mayo Rochester. I spent the entire spring of 2009 in Rochester at Gift of Life House with intervals in the Mayo Methodist Hospital. I was on dialysis until transplant on April 22. three weeks later I was able to return home. I (with my husband) do return to Mayo annually for follow-up evaluation. My local PCP takes good care of me during the rest of the year.

Here are some discussions that I want to suggest to you:
Liver transplant - Let's support each other
https://connect.mayoclinic.org/discussion/liver-support-group/
Snapshots of hope: Life on the other side of transplant.https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

I hope that you will get some answers about your lung lesions. Are you being monitored for that? Do you return to Mayo for an annual evaluation?