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Waldenstroms and amyloidosis

Blood Cancers & Disorders | Last Active: Apr 28 8:35pm | Replies (72)

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@loribmt

I’m just catching up with your post and my heart goes out to your children’s father. He’s very fortunate to have a good relationship with you as he’ll need a caregiver for a period of time.
Having a blood cancer is frighting, to say the least. But I’m glad he’s into treatment quickly. Chemo can be rough but so important to get started. Hopefully he’ll be able resume the meds when his blood numbers improve again after the blood transfusion. His nose bleeds are from the low blood platelet level, so his clotting time will be very slow. That should improve when he’s given a blood transfusion or a platelet infusion. I used to get those epic bleeds too. Now’s not the time to take up knife juggling! ☺️

Another opinion in treatment of a life altering illness is always a good idea. Often a larger, teaching hospital would be a good place to have that second consult. They may recommend the same treatment but then at least you’ll feel more confident in your local oncologist/hematologist.

Do you live near a larger city?

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Replies to "I’m just catching up with your post and my heart goes out to your children’s father...."

Thank you for responding by the way. I am in Texas so Houston, San Antonio, Dallas those are not to far from us. I just can't get him to go seek a second opinion. He is still trying to hold onto his job and going through all this. That's another one of my concerns. What happens if he loses his job and can't pay for treatments? Or can they fire him for going to his Dr appts and not going to work. I worry about all that for him. We are not married so I can't put him on my insurance unless I marry him. Which I have thought of too. Because I really don't want my boys to be without a father. I am just going through all the scenarios of what if's.