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He was really nervous going in but he took it like a champ. He was only able to do half of his chemo because he was so low with his blood levels. I believe he will be getting another blood transfusion today. He didn't get sick after or anything he was just really weak probably because of the low blood levels. But in Jesus name we pray a miracle happens and maybe this nightmare disappears one day. What do you think about him getting a second opinion or going to a bigger city? We live in a small town. I am scared that he could be getting better treatment else where than here.
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Because WM is a rare blood cancer, some oncologists have no experience with WM. I would strongly recommend consulting with a WM a specialist. The IWMF website has a list of WM specialists. If you have questions, I will be happy to assist you in locating a specialist. Eunice
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I’m just catching up with your post and my heart goes out to your children’s father. He’s very fortunate to have a good relationship with you as he’ll need a caregiver for a period of time.
Having a blood cancer is frighting, to say the least. But I’m glad he’s into treatment quickly. Chemo can be rough but so important to get started. Hopefully he’ll be able resume the meds when his blood numbers improve again after the blood transfusion. His nose bleeds are from the low blood platelet level, so his clotting time will be very slow. That should improve when he’s given a blood transfusion or a platelet infusion. I used to get those epic bleeds too. Now’s not the time to take up knife juggling! ☺️
Another opinion in treatment of a life altering illness is always a good idea. Often a larger, teaching hospital would be a good place to have that second consult. They may recommend the same treatment but then at least you’ll feel more confident in your local oncologist/hematologist.
Do you live near a larger city?