← Return to Anyone had disseminated intravascular coagulation (DIC)?

Comment receiving replies

Hi @kbreder ,

My name is Amanda. I am so glad you found this group. I hope you will feel a sense of support and connection here.

I will share a little bit of my story. My son was born via C-Section in February 2018. Shortly after his birth, my blood pressure dropped rapidly and I was rushed to the Shock Trauma ICU. I was experiencing DIC, most likely from a rare condition known as Amniotic Fluid Embolism. Over the next four hours, I was in surgery for an emergency hysterectomy and blood transfusions of more than 75 units of blood. A social worker was sent out to tell my family I was "actively dying". I survived, but had a difficult road to recovery. I was in a coma for seven days, then in the ICU for several more weeks.

I can very much relate to your words, "life has been so very different". A mentor for me in this group helped me realize that life altering medical experiences like ours often necessitate a need for grieving. It seems strange to be grieving since no one has died, but we must acknowledge the losses and changes we have experienced.

Understanding the nature of PICS and Post Traumatic Stress has also been important in my recovery.

If you are interested, I'd be happy to share more that has helped me, but I don't want to overwhelm.

Best wishes to you, my new survivor friend.

Amanda Grow

Jump to this post

Replies to "Hi @kbreder , My name is Amanda. I am so glad you found this group. I..."

Thank you so much for reaching out. I received over 50 units and was in surgery for about 5 hours before having to be airlifted to another hospital. I spent two days in the ICU and then a week recovering on the OB floor. Actively dying sounds about right! I laid in the hospital slowly dying for hours before, such a helpless feeling.

I definitely understand what you say about grieving. I feel like I've been slowly making my way through all the stages of grief.

I'd love to hear what you've found to help you. It's great to find other survivors to talk with.

Thank you again for reaching out.