I'm excited that you're consulting with Dr. Cope this week. I hope she is able to fill in some gaps in what is going on and what to do next.

You've been through a lot. I wonder if you've ever heard of post intensive care syndrome (PICS). It sounds like you're experiencing PICS symptoms along with your physical issues. You can connect with others who have an ICU experience and PICS in the Intensive Care (ICU) support group here: https://connect.mayoclinic.org/group/intensive-care-icu/

I think you'll resonate with this discussion and others:
- Post-Intensive Care Syndrome (PICS) - Let's talk https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/

I'm so happy to hear about your blessing and that he is growing off the charts. Please do let me know how your appointment goes.