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Caregiving: I’m frustrated and exhausted.

Caregivers | Last Active: Mar 27, 2022 | Replies (223)
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@sueinmn

Wow! You have a tremendous load, as does your husband. I am so happy to hear that the two of you were able to undertake raising two very challenged children - I have just a little understanding of what you have been through, after watching my brother raise his autistic grandson and continuing to support him into adulthood. I am especially familiar with the lack of executive function. May I ask if you live in a metropolitan area? Now that Covid is beginning to relax its grip, you might be able to find some community support yo relieve your 24/7 burden.

I am sure your kids have received special services in school, does the support staff have any suggestion of resources for you? Also, do you have an animal humane society or rescue in your area that could interest your daughter? Finally, can you qualify for weekly respite care for a few hours so that you can get out of the house alone?
If nothing else, you have found a place with others facing your situation, who can offer a listening ear.
Sue

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Replies to "Wow! You have a tremendous load, as does your husband. I am so happy to hear..."
ls1313 | @ls1313 | Mar 21, 2022

Thanks for answering. We live right next to Detroit, Warren. It’s the 2nd largest city in Michigan! We have a local FASD support group that I’ve been running since March 2020. I think we’ve met about 5 times! LOL! 😂

A friend has offered me 2 nights at her farm Airbnb. It’s right after our vacation, so I WILL need the rest/clear my brain. Being with Callie & her kids, and Mark too. It will be wonderful.

Tho there IS respite available, the Michigan heal & human services is so overwhelmed, there’s no respite available for more than a year.🙁

I take things one day at a time. The other 3 can run circles around me, they can make dinners. But I really need to go grocery shopping with them! I’m supposed to be eating more veggies, fruit, fewer carbs, some fish. I write these things on the list each week. They come home with very little that I asked for. Reason, it’s too expensive. Ok, but I’m trying to eat HEALTHY foods. 🤷🏼‍♀️🤷🏼‍♀️

We did a photo shoot on December 24 in Mint Hill, NC. The rest of the family lives there. They used to all be up here in Michigan.
Laurel

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