I start by assuring them that the infections being treated are deep in my lungs and totally not contagious to others - in fact, you are more apt to catch some bug from them than they from you. Then I will explain that my lungs are permanently damaged - for causes unknown they don't move air and mucus properly, meaning I may be short of breath and/or fatigued, may get infections that need treatment for a very long time, and that while the infection can be cured or managed, the underlying damage stays with me.
After 4+ years, I always explain that, like diabetes or arthritis, bronchiectasis is just something I live with. That there are "treatments" I do daily to stay healthy (nebbing & airway clearance.) Things I no longer do (hot tubs or indoor water aerobics.) Good days and bad days... As I get older, I find more and more people understand. Sometimes it is a relief to them to be able to also admit to no longer having the energy for some activities, or needing a day off or a nap. Or that they have a persistent but invisible health issue to live with.
Now that there are many people reporting long Covid, an easy way to explain is that like many with long Covid, you look normal, but have "hidden issues." Then, depending on how much detail you want to share, you can explain about the side effects of the meds, or the toll the meds + infection take on your body.
As for the Azithromycin headache, I always took mine at bedtime & after several weeks they began to subside. I found that staying super-hydrated helped. Also, eating something and taking one Tylenol with it helped.
Sue
Thank you so much for your reply, Sue. I liked the way you warned others that you are not contagious to them. That allows other people to relax while in my presence. I also liked the comparation to diabetes or arthritis, good days and bad days and long term treatment causing fatigue and weariness. Living with a persistent but invisible health issue is an excellent way to describe this condition.
I will continue with the Azithromycin at night as it has only been five days and, as you indicated, perhaps after a while the head ache will subside. I can no longer take Tylenol because apparently, in me, even that med causes havoc with my liver.
I have much to learn. Being able to ask questions of someone who has had experience with these issues is a huge help. Thank you. Nancy