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summer33
@summer33

Posts: 10
Joined: Dec 03, 2018

Legs hurt so bad

Posted by @summer33, Mon, Dec 3 12:09pm

Hi, my name is Summer, I have been diagnosed with MAC after having a DVT which hit my lungs.my leg hurt from the dvt and a lot worse after I was diagnosed with MAC. The pain in my leg gets almost unbearable at night. I do wear the hose my Dr. recommend, but nothing helps other than Naproxen which I was told not to take with the three med’s I am on. I do not sleep well due to the discomfort from the side affects and my hurting legs. Yes, I am so very tired with this big change my body is going through. Also ringing ears, never stops. My doctor has decided to put me on anew medication called Arikares which has a lot of bad side effects, I have decided not to take this treatment due to that. I just want to know how long does it normally take to get control {over} this disease ? I am new to this Discussion page , but find it so helpful to know others are out there going through the same sickness to share .I pray they will find a treatment that will be easier to take and heal faster.seems like we all are suffering the same symptoms I will pray for all of us through this journey.

REPLY

@summer33 … I found relief with acupuncture after using the big 3 for 14 months to get rid of MAC. No pain killers needed now. It is worth trying-I travel 60 miles to get it.

I will ask my doctor about acupuncture. I have had a really bad day today, indigestion real bad. My body hurts all over. How long were you on the 3 med’s ? Did you eat before taking the 3 or after ?

@summer33, Hello, and welcome to our group. I hope you will take the time to read over past posts because there is a lot of good information in our conversations. You can also go the this group's home page and click on 'Discussion' from the board. There, you will find many topics that will help you navigate through this disease. Keep poking around this site and you will learn how to use it optimally. For example: you can click on people's @name, and see all that they have posted. i.e. if you read my past posts, you will learn that I chose a different treatment option other than the Big 3; and it worked for me. Please do feel free to ask questions. You certainly are not alone with this, there are a whole lot of us on here who totally get what you are going through. Hang in there, there are ways to improve your health.

@summer33

I will ask my doctor about acupuncture. I have had a really bad day today, indigestion real bad. My body hurts all over. How long were you on the 3 med’s ? Did you eat before taking the 3 or after ?

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@summer 33
I took the medicines with food and was on them for 14 months. I also took probiotics every day.

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