Living with Neuropathy - Welcome to the group

Hello @kashc100, Welcome to Connect. There is another discussion that you might find helpful and can meet others who have shared similar experiences --- Alcohol-related Neuropathy: Anyone had good treatment results?: https://connect.mayoclinic.org/discussion/alcohol-related-neuropathy/.

Probably one of the best things to do for yourself is to learn as much as you can about the condition and what treatments might help. Two sites that have a lot of great information are:
-- Neuropathy Commons: https://neuropathycommons.org/index.php/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

You mentioned that you have not been diagnosed yet. Are you planning to setup an appointment with a neurologist to seek a diagnosis?

Get a diagnosis first. Then you can try to attack the problem.

I am new to connect and am going to be tested for small fiber neuropathy and have had neuropathy side affects after my two covid vaccines and the booster. The vaccine side affects lasted about three weeks and then went away but the booster has lasted much longer. I am wondering about other people with peripheral neuropathy and side affects from vaccine and help with my journey with peripheral neuropath and possible small fiber neuropathy. Thank-you

Welcome @beegie, Sorry to hear you had adverse effects to the COVID vaccines and booster. There is another discussion you may want to read through here and learn the experiences shared by other members:

COVID vaccines and neuropathy: https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

Did you report the adverse side effects from the COVID vaccine and booster to VAERS?
-- https://vaers.hhs.gov/reportevent.html

For me, the COVID vaccine didn't have any impact on my neuropathic state - no better no worse.

I have idiopathic PN and I too can’t say with any degree of certainty that the vaccine or boosters did anything else to my PN. The nature of my PN is that it is a roller coaster, some good days, some bad. Like my doctors, I haven’t figured out the cause if my PN or the secret formula to guarantee the good days vs the bad, but do know that all I’m going through is the same before & after the vaccines and booster. I am very thankful to say to date I’ve never contracted Covid, which I know would be hard on me, so I’m counting it as a blessing.

my name is Beth. I had chemotherapy a year ago. I have been left with numbness in both feet and tingling in left hand. I have started gabopentin at night before bed. I also have a machine that vibrates feet. Can't tell anything has helped much. I would be happy to hear of any treatments that you all have found helpful. Thanks

Likewise

Welcome Beth @cbhagler, There are a couple of other discussions related to chemo induced neuropathy where other members have shared their experience and you might find helpful.

-- Chemo-related Neuropathy: https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/
-- Chemo-induced Peripheral Neuropathy and Breast Cancer: https://connect.mayoclinic.org/discussion/neuropathy-11/
-- Foundation for Peripheral Neuropathy Webinar - Chemo-Induced Peripheral Neuropathy: https://youtu.be/eNkDf9ezXFo

Is the machine that vibrates a whole body vibration device?

Hi Beth - I had PN before chemo, and was already taking Gabapentin. The chemo made my PN worse, but only temporarily I’m glad to say. We increased my Gabapentin a little during that time, though I was already taking 3 a day. It sure helped with the night sweats and chills, and I feel it helped get my numbness and tingling back to pre-chemo levels. It took a few weeks to start working consistently though. I’ve yet to try a vibrator for numb feet.