Experience with Radio Frequency Ablation procedures?

Posted by Sam65 @sam65, Sep 29, 2017

Hello. First, I should mention that this is my first post to the group.
I have had neuropathic pain issues in my feet for many years made worse by surgeries that have resulted in scar tissue that has formed around the nerves. Over the years I have become diabetic (Type 2), although, it has always been considered well controlled. However, I recently had a skin biopsy performed which indicated that I did not have the clinical definition of neuropathy since the nerve cell counts were well within normal ranges. The biopsy did show "small anoxal swellings in the epidermis and sub epidermis." My doctor said this condition is often a forerunner of nerve cell loss and is correlated to patients experiencing burning pain. Ultrasound scans have also found scar tissue in the areas that I experience the burning nerve pain.
I am hoping to hear from anyone who has tried one of the Radio Frequency wave ablation procedures to reduce neuropathic foot pain or knows of any literature on the subject.
Thanks

Interested in more discussions like this? Go to the Spine Health Support Group.

@irr4et

Geez. I’m considering v having Occipital Nerve RF Ablation Rt now but they insist on doing the Lidocaine injection test first to determine if RFA will relieve the nerve pain. And “so they know the exact place’”. The problem is - every time I have a lidocaine injection it scalds the nerve and area tissues which greatly increases the pain. Should I do this injection? I would appreciate your advice.

Jump to this post

@irr4et Hello there. I hear you loud and clear on this because I've been in the same position. I received RFA's for 2 years on both right and left occipitals, in addition to cervical. At first I thought I found relief, enough to keep going back, but ultimately all I felt was increased pain. It was later narrowed down that I have Central Sensitization Syndrome (CSS) which is a chronic pain disorder caused by an upregulation of the central nervous system resulting in hypersensitivity to stimuli. Here is more info on CSS:

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

Nerve blocks should be done first to assist in determining if quieting the nerves helps bring comfort. If you have pain from lidocaine injections I would say do not go forward with the procedure. You yourself said, "it scalds the nerve and area tissues which greatly increased pain". I was a glutton for punishment and learned the hard way by persisting and putting my body through so much unnecessary pain in hopes of finding pain relief. It was counterproductive. For some, it may work, but its most important to listen to your body.

Many people suffer from CSS, but have never heard of it or been educated about it. Doctors do not often have knowledge of CSS. Will you get back to me after watching the video on whether it resonates with you?

REPLY
@rwinney

@irr4et Hello there. I hear you loud and clear on this because I've been in the same position. I received RFA's for 2 years on both right and left occipitals, in addition to cervical. At first I thought I found relief, enough to keep going back, but ultimately all I felt was increased pain. It was later narrowed down that I have Central Sensitization Syndrome (CSS) which is a chronic pain disorder caused by an upregulation of the central nervous system resulting in hypersensitivity to stimuli. Here is more info on CSS:

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

Nerve blocks should be done first to assist in determining if quieting the nerves helps bring comfort. If you have pain from lidocaine injections I would say do not go forward with the procedure. You yourself said, "it scalds the nerve and area tissues which greatly increased pain". I was a glutton for punishment and learned the hard way by persisting and putting my body through so much unnecessary pain in hopes of finding pain relief. It was counterproductive. For some, it may work, but its most important to listen to your body.

Many people suffer from CSS, but have never heard of it or been educated about it. Doctors do not often have knowledge of CSS. Will you get back to me after watching the video on whether it resonates with you?

Jump to this post

I was diagnosed with CSS two Yrs ago after having already suffered with Fibro for 19 Yrs. Pain creates more pain. I watched that great vid owl then but it is so helpful to watch it again. I refused to have the lidocaine block. But I do plan to receive two weeks of daily IV Ketamine beginning 3/28 bc my CSS is so severe that it’s literally killing me. I’ve tried all the traditional pain meds and patches etc and they all just make me CSS angrier. Except CBD wh makes me sleepy, somewhat lower BP and constipated. Do you think I should proceed with the Ketamine IV’s?

REPLY
@irr4et

I was diagnosed with CSS two Yrs ago after having already suffered with Fibro for 19 Yrs. Pain creates more pain. I watched that great vid owl then but it is so helpful to watch it again. I refused to have the lidocaine block. But I do plan to receive two weeks of daily IV Ketamine beginning 3/28 bc my CSS is so severe that it’s literally killing me. I’ve tried all the traditional pain meds and patches etc and they all just make me CSS angrier. Except CBD wh makes me sleepy, somewhat lower BP and constipated. Do you think I should proceed with the Ketamine IV’s?

Jump to this post

@irr4et I'm glad you re-watched the CSS video by Dr. Sletten. I agree, it helps to re-enforce our understanding about CSS and its management. That's the thing, you nailed it, pain pills, injections, patches, they just make CSS angrier. I learned that the hard way for a few years before making the decision to take a new approach and attend Dr. Sletten's pain rehab program in Jacksonville. I now have a new outlook on pain management. Are you familiar with Mayo's Pain Rehabilitation Center?
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Might it be an option for you?

REPLY
@betterway

I have SI Joint Pain and have tried multiple steroid Injections with no relief. I did have relief with the test injections prior to the Ablation. Unfortunately, the test injections wear off in a very short time hours. The Ablation burns the nerves and the pain during the burnings are intense. I was able to tolerate it still it was tough. Afterward It was like the other injections 15 minutes recovery, and I was able to walk as before, I did not notice any immediate change in my pain level. I did as I was instructed ice and rest. As with the other injections next few days pain increased. Three days later I was back at the Dr's for follow up. No Change. After about a week the pain began to go down. Still was in the same pain as before the Ablation. Was told by the Nurse it could take a while for the nerve to quit. A month Later back at the Dr's office. Still in pain. Can I tell you how sad I was? Dr said sometimes it takes a few months for the nerve to quit, A month later having a better day than some. I was thinking maybe it was starting to work. Of course, I'm doing little to nothing every day. Virtually on bed rest except for 1 or 2 hours. Went outside and using the electric blower cleared some leave from the yard, deck, and patio. Feeling pretty good about having accomplished something. The night was rough as usual next morning same pain as always. So, now what. Do it again the Ablation that is I don't know I have another Dr's appt soon. The emotional toll is as tough as the physical pain. Research says right now I am in the 30% that don't have success with Ablation. Give me a break, really.

Jump to this post

HI betterway: just seeing your post. Wondering if you've had another RFA and if it helped? I'm considering having it done but, like your experience, not convinced it will provide any lasting benefit. I have been dealing with degenerative lumbar spine and failed knee replacement. Fortunately, pain is manageable, but like you I am unable to do much physically. Certainly understand the emotional toll aspect as I feel the same and sometimes I just stop trying to figure it all out. One spine doc told me I may have to live with it. After many years, I think he is right.

REPLY
@ashby1947

Hello! Has anyone had radiofrequency ablation for SI joint back problems/pain? I've had 3 SI joint and facet injections in the past few months, and they just don't last to alleviate the pain. So, I'm scheduled for the ablation. I would appreciate hearing about any experiences you have had with the RF ablation: what was the recovery time; how soon did you feel relief; how long the procedure lasted; and, anything else you would care to share. I'm a 73 yo woman, lean and healthy. Unfortunately, the progression of my osteoarthritis and stenosis have resulted in functional impairment. I don't ever expect to do much gardening again; however, I would like to get back to walking and other exercises.

I look forward to hearing of your experiences! Thank you, Sue

Jump to this post

I've had them done that Rush hospital in Chicago. They seem to work for less than 6 months. But everybody's body is different. They did one side first and then a month or so they do the next side. I stop getting them done. At night my back to spasm so I jump up a lot. I hope I shed some light.

REPLY
@ashby1947

Hello! Has anyone had radiofrequency ablation for SI joint back problems/pain? I've had 3 SI joint and facet injections in the past few months, and they just don't last to alleviate the pain. So, I'm scheduled for the ablation. I would appreciate hearing about any experiences you have had with the RF ablation: what was the recovery time; how soon did you feel relief; how long the procedure lasted; and, anything else you would care to share. I'm a 73 yo woman, lean and healthy. Unfortunately, the progression of my osteoarthritis and stenosis have resulted in functional impairment. I don't ever expect to do much gardening again; however, I would like to get back to walking and other exercises.

I look forward to hearing of your experiences! Thank you, Sue

Jump to this post

I’ve had Facet injections and rfa, at different times of course. I actually get more relief from the facet steroid injection. However, my doctor will be doing a facet block and then rfa, because insurance co don’t want to approve facet injections. I’m willing to try this. Hoping it works.

REPLY
@rondello

yes, I have had it done twice, sorry to say it did not work for me, Mine is a compression fracture, I was so hopeful, as the trail procedures went well, however, the real procedures did not. The doctor feels it is the compression fracture that is stopping it from working. It does work for some people, Hopefully it will work for you. Good Luck!

Jump to this post

Didn’t work for me either.

REPLY
@irr4et

I was diagnosed with CSS two Yrs ago after having already suffered with Fibro for 19 Yrs. Pain creates more pain. I watched that great vid owl then but it is so helpful to watch it again. I refused to have the lidocaine block. But I do plan to receive two weeks of daily IV Ketamine beginning 3/28 bc my CSS is so severe that it’s literally killing me. I’ve tried all the traditional pain meds and patches etc and they all just make me CSS angrier. Except CBD wh makes me sleepy, somewhat lower BP and constipated. Do you think I should proceed with the Ketamine IV’s?

Jump to this post

RFA was a total waste of several years for me. Putting yourself through more pain to get three months relief at a time- forget it. Nearly had me trying to crawl off the table during the procedure. And nerves always forged new pathways as they grew back. Not worth it. I now have a Medtronic pain pump that works great.

REPLY

Radio Frequency Ablation: Anyone care to share their experience. I had my SI joint block test indicating I would be a good candidate. Thank you

REPLY
@meesh

Radio Frequency Ablation: Anyone care to share their experience. I had my SI joint block test indicating I would be a good candidate. Thank you

Jump to this post

I had RF ablation at T10 and T11. It alleviated some of my pain. Really needed T12 also. The doctor who did it told me it would last the rest of my life. It lasted 4 months. I'm getting another one soon. Will get t10, 11, and 12.

REPLY
Please sign in or register to post a reply.