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Brain mutation without a definitive diagnosis: Any thoughts?

Brain & Nervous System | Last Active: Mar 18, 2022 | Replies (3)
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@colleenyoung

Hi @lossofsleep123, welcome. I added your post to the Parkinson's Disease group (https://connect.mayoclinic.org/group/parkinsons-disease/) and to the Caregivers: Dementia group (https://connect.mayoclinic.org/group/caregivers-dementia/) as well as the Brain & Nervous System to bring more potential participants to this discussion.

I know that you are looking for a diagnosis. That's above my paygrade. Have you consulted with a large medical facility leading in neurology? What symptoms is your wife (and you) dealing with at the moment? What is the most challenging?

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Replies to "Hi @lossofsleep123, welcome. I added your post to the Parkinson's Disease group (https://connect.mayoclinic.org/group/parkinsons-disease/) and to the..."
lossofsleep123 | @lossofsleep123 | Mar 17, 2022

Just dealing with the usual signs/effects of Dementia and Parkinson's. Both mental and physical are deteriorating. Yes we have been seen by a facility of neurology (UNMC).. They even went as far as sending a blood test to the Cleveland Center for Neurology where my wife's brother's brain was donated and studied. Even though they both have the same traits, the blood test came back as "no similarities". The most challenging is not knowing the definitive diagnosis. I've got children and grandchildren. Need to get this figured out.

Thanks for your post.

john L.

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