Alcohol-related Neuropathy: Anyone had good treatment results?

Posted by bocagrande @bocagrande, Feb 22, 2022

Who has experienced good results for alcohol neuropathy treatment at Mayo Clinic

Interested in more discussions like this? Go to the Neuropathy Support Group.

@artscaping

Good morning @sikocesca. I am just waking up and saw your question about MFR. I am happy to say......"Yes, MFR can help numbness and tingling in the feet."

I have MFR sessions every week. One of my therapists works on my feet and there is a good reason. I have to be able to drive and I don't want to be dangerous on the road. I need to feel the brake and gas pedal. Here is what she told me about the way she insures my safety and actually others on the road.

"Bilateral leg and foot release followed by soft tissue mobilization of the plantar area using cross-fiber friction techniques."

I am sure you will be able to receive sufficient foot treatment to be a safe and comfortable driver. Have you been diagnosed with SFN.....small fiber neuropathy?

May you be safe, protected, and free from inner and outer harm.
Chris

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Thanks Chris! I saved your description of treatment above and will look for a therapist! I have tried everything else!
Luann

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@jeffrapp

Alcohol alone, without alterations of Vitamin B1, can cause peripheral neuropathy.
I have also been a nearly daily social drinker until recently. At least one of my providers felt that this was most likely the cause of my PN. Others have almost scoffed at the idea, considering my level of alcohol use.
Soon after my diagnosis, I completely abstained for several months. Nevertheless, my PN was progressive. At this time, I drink a glass or 2 of wine nearly daily. The PN continues to be progressive.
My take is that no one knows precisely the amount of alcohol necessary to cause alcoholic PN. Furthermore, I believe once the nerves are damaged, from whatever cause, it is unlikely they will heal.
It's the individual patient's call, whether to give up or reduce your alcohol intake. If you do, you may be limiting the progression of the disease. The down side is that you have to give up drinking, without really knowing if it makes any difference.
As with almost everything about this maddening disease, its confusing.

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@jeffrapp I was diagnosed about 8 , 9 years ago. I was a daily drinker 2 -3 glasses of wine . It helped my pain at night and at least my ability to mentally calm down. My neuropathy went from numb and tingly to stabbing pains in my toes. Last year I finally decided to give up alcohol. If you read the effects , it can cause so many physical and mental issues. It was difficult to give up but mixing gabapentin, Cymbalta, and supplements with alcohol also causes problems so why risk it?
I find my neuropathy is staying the same at least and not progressing, my memory is 10 times better and I lost 20 lbs which puts less pressure on my feet. A couple months isn’t long enough and I hope you will consider trying again. Medical cannabis is a good alternative to replace the alcohol. Why do anything that is proven to cause nerve damage?
Good luck,
Luann

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@jeffrapp

Alcohol alone, without alterations of Vitamin B1, can cause peripheral neuropathy.
I have also been a nearly daily social drinker until recently. At least one of my providers felt that this was most likely the cause of my PN. Others have almost scoffed at the idea, considering my level of alcohol use.
Soon after my diagnosis, I completely abstained for several months. Nevertheless, my PN was progressive. At this time, I drink a glass or 2 of wine nearly daily. The PN continues to be progressive.
My take is that no one knows precisely the amount of alcohol necessary to cause alcoholic PN. Furthermore, I believe once the nerves are damaged, from whatever cause, it is unlikely they will heal.
It's the individual patient's call, whether to give up or reduce your alcohol intake. If you do, you may be limiting the progression of the disease. The down side is that you have to give up drinking, without really knowing if it makes any difference.
As with almost everything about this maddening disease, its confusing.

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Quitting alcohol...not so difficult unless you have a problem.

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@jeffrapp

Alcohol alone, without alterations of Vitamin B1, can cause peripheral neuropathy.
I have also been a nearly daily social drinker until recently. At least one of my providers felt that this was most likely the cause of my PN. Others have almost scoffed at the idea, considering my level of alcohol use.
Soon after my diagnosis, I completely abstained for several months. Nevertheless, my PN was progressive. At this time, I drink a glass or 2 of wine nearly daily. The PN continues to be progressive.
My take is that no one knows precisely the amount of alcohol necessary to cause alcoholic PN. Furthermore, I believe once the nerves are damaged, from whatever cause, it is unlikely they will heal.
It's the individual patient's call, whether to give up or reduce your alcohol intake. If you do, you may be limiting the progression of the disease. The down side is that you have to give up drinking, without really knowing if it makes any difference.
As with almost everything about this maddening disease, its confusing.

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I drank Alcohol frequently during my college years and being single until age 30, then quit entirely. That was almost 50 years earlier. Around age 45 I began a long term neurological dysfunction, MECFS, the severe, progressive type. Now, about 2 years ago I developed neuropathy in my legs, progressive and very painful, stabbing. I just began taking a shot of Vodka late pm to help calm racing thoughts in insomnia. I’m wondering if this routine or the early years drinking was/is related to these neurological problems; and if medical marijuana might actually help - and where to buy it online? Neurologist actually recommended it!

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@stress

I drank Alcohol frequently during my college years and being single until age 30, then quit entirely. That was almost 50 years earlier. Around age 45 I began a long term neurological dysfunction, MECFS, the severe, progressive type. Now, about 2 years ago I developed neuropathy in my legs, progressive and very painful, stabbing. I just began taking a shot of Vodka late pm to help calm racing thoughts in insomnia. I’m wondering if this routine or the early years drinking was/is related to these neurological problems; and if medical marijuana might actually help - and where to buy it online? Neurologist actually recommended it!

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As I said, there is evidence that drinking alcohol regularly may cause PN. However, that does not mean that everyone who drinks regularly will develop PN. In particular, I don't think having one shot of vodka a night is likely to be the culprit. On the other hand, if you do not want to take the risk, it is certainly reasonable to stop drinking.
BTW, using alcohol as a medicine for sleep is considered a no-no. It actually may disturb your sleep later.
There is some evidence that medical marijuana may be helpful. I don't think you can buy marijuana online, but yo can buy various products counting mostly CBD. Google it.
Sorry for your discomfort.

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@jeffrapp

As I said, there is evidence that drinking alcohol regularly may cause PN. However, that does not mean that everyone who drinks regularly will develop PN. In particular, I don't think having one shot of vodka a night is likely to be the culprit. On the other hand, if you do not want to take the risk, it is certainly reasonable to stop drinking.
BTW, using alcohol as a medicine for sleep is considered a no-no. It actually may disturb your sleep later.
There is some evidence that medical marijuana may be helpful. I don't think you can buy marijuana online, but yo can buy various products counting mostly CBD. Google it.
Sorry for your discomfort.

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Based on my personal experience with neuropathy, eliminating alcohol reduces my nerve pain symptoms. On the other hand, marijuana seems to help. I live in a state where marijuana is legal and have found that 30 to 40 mg at bedtime reduces nerve pain feelings in my feet upon waking the next morning.

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IF, a person had a history of moderate alcohol use and develops neuropathy, will continuing to have an occasional cocktail...limited to 1 or 2 be of any significant concern as far as neuropathy symptom?

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@windsorchris

IF, a person had a history of moderate alcohol use and develops neuropathy, will continuing to have an occasional cocktail...limited to 1 or 2 be of any significant concern as far as neuropathy symptom?

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I once had the same question, and asked many providers. Unfortunately, I don't think there is an evidence based answer.
Does anybody have any different answer?

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@jeffrapp

I once had the same question, and asked many providers. Unfortunately, I don't think there is an evidence based answer.
Does anybody have any different answer?

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I’ve never read anything other than it can induce neuropathy which is enough for me to stop drinking any alcohol. I don’t think there is any evidence based information on occasional drinking making it worse.

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The neurologist I saw said it was from alcohol, and basically gave me gabapentin. I only consulted with the nurse, then dr said that's what it is. No nerve studies or additional labs. I wanted to know the extent of the damage and if it could be improved. I can't get a ballpark answer. I was honest with him and said that I had drank beer daily for 5 yrs. He told me to quit, so I did. Taking gabapentin and 7 vitamins. I am also trying neuropure. Gabapentin gives minimal relief. Nothing is helping, and It seems like he thinks of me as not worth his time. Does anyone know how long it takes for neuropathy to get improved with stopping alcohol and taking medication/vitamins? Is there anything OTC that help? I have a 7yr old to take care of and drive to school. Hard when I can't turn the key to start my car. Let alone go outside and play. Thank-you for any assistance!

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