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Where and how I can look for good specialists in transplant?

Transplants | Last Active: Mar 15, 2022 | Replies (4)
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@echo2022

hi younger sister. I'm glad to hear from you. I made an appointment of specialists in April and May. It seems that I also need to take annual evaluation here. What is it usually including?
I take tacrolimus 1.5mg twice every day. The medicine level is 4.1 or so. I'd like to know how you take it.

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Replies to "hi younger sister. I'm glad to hear from you. I made an appointment of specialists in..."
Rosemary, Volunteer Mentor | @rosemarya | Mar 15, 2022

Hi Younger sister. I'm happy to hear that appointments are set for April and May.
I have a liver and a kidney transplant. I got both at the same time: one surgery, one donor; two organs. I was initially a patient in Kentucky, but complications developed and I was transferred to Mayo in Rochester. I am aware that there are some variations to follow-up care at different transplant centers.
I have routine labs drawn locally every 3 months. My primary care physician (PCP) monitors my health locally, and he is in contact with Mayo if necessary. It is a coordinated effort that works well for me. I also keep up to date with my prevention screening locally (mammogram, annual physical, colonoscopy etc).
My upcoming annual evaluation, at Mayo, will include: blood tests (labs) and urine sample; a 24 hr urine sample; medical review and consults with both liver and kidney dept; EKG; chest X-ray; abdominal ultrasound; Dermatology check; Renal Function . Every 2 years I have a bone density scan.
As for my tacrolimus and my mycophenolate, I take them every 12 hours. My reminder is set for 8 AM and 8 PM, which is the most convenient time for me.

Will both you and brother be having appointments? Are you a transplant recipient, too?

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