← Return to Livedoid vasculopathy

Discussion

Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: May 26 7:04am | Replies (251)

Comment receiving replies
@colleenyoung

Hi @cwhorton, welcome. Allow me to tag fellow members like @msmerry @ykh128 @yoan02 @ruthnz @zenk @patientrea @cleverrover, who have experience with livedoid vasculitis and can share their experiences with you and their tips for avoiding outbreaks and dealing with warm weather.

You also asked about what kind of doctor to see. Livedoid vasculopathy is complicated. At Mayo Clinic, experts work together from multiple departments to treat those with LV. You can read Cheryl's story here as one example:
- Surprise Diagnosis Spurs Learning Curve, Search for Help https://sharing.mayoclinic.org/2015/11/25/surprise-diagnosis-spurs-learning-curve-search-for-help/

CWhorton, have you consulted with a hemotologist and a dermatologist?

Jump to this post


Replies to "Hi @cwhorton, welcome. Allow me to tag fellow members like @msmerry @ykh128 @yoan02 @ruthnz @zenk @patientrea..."

Yes currently have been seeing a dermatologist and hematologist not at Mayo and have an apt with a vascular surgeon. Thanks for tagging others with similar issues.