Connect
← Return to Prolia treatment for osteoporosis: What is your experience?
Discussion
Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Mar 29 11:52am | Replies (1218)Comment receiving replies
I'd tell u Don't do it. I took only 2 shots of Prolia. After the 1st I ended in the ER for a rash and unbelievable itching, which over 2 years later the itching without the rash is still here. Right after the 2nd shot. While leave the clinic my right hip started to hurt, and continued till the pain we so bad I finally went to the doctor. After xrays, it was determined I had hip necrosis. I needed a total hip replacement. Then my both shoulders started hurting, and range of motion was gone. More xrays, severe arthritis with rotator cuff damage. Both shoulders need full replacement. Both my knees are having the same issue. Both need replacing. I was a very active person before Prolia
3 or 4 days of exercise using a Bowflex Max Trainer, and swimming on warm days. I can't believe what my life has turned into. So that's been my horror story about Prolia.
Replies to "I'd tell u Don't do it. I took only 2 shots of Prolia. After the 1st..."
@ellye in joining the group recently yours was one of the first posts that stood out to me. I'm so sorry to hear this—what a total nightmare. May I ask, do you think everything was related to the 2 Prolia shots? Reclast was my first nightmare drug—I was horribly ill from that for 4 months. The next year I took nothing because I was afraid what would be next. However, my bone density test revealed that I'd better do something, I agreed to Prolia and have been on it since 2009 with little to no side effects. I'm here to learn about Evenity because I fractured this summer. An accident, tripped over a bag of potting soil in the garage and went sailing into a wooden pallet we store wood on for winter and landed on the concrete floor. Wouldn't most people fracture even without osteoporosis problems? I see it as severe trauma likened to a car accident or something. My doc views this as drug treatment failure. Last night we discussed recent results of BD—doc wants me on Evenity. After expressing my concerns again, gave me a referral to a Dr in NYC (I live very close) as a 2nd consult. Small detail: she's not taking new patients. The consult is referring 2 other Dr's in her group. One looks 13 yrs old, not much Endo experience, the other reviews aren't great and again, more Internal Med experience than Endo. This group has shown me in a very short time how we all react differently to medication. One persons nightmare is another's saving grace. But the exchange of information is SO helpful—a huge THANK YOU TO EVERYONE HERE! May we all move forward gently.
Connect
So what are you on now? Sounds like you had a very adverse (and prolonged) reaction to Prolia. Sounds more like a nightmare. Many take it with zero (at least obvious) side effects. So sorry you were not among them.