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CKD Stage 2, No known cause

Kidney & Bladder | Last Active: Jul 8 9:26am | Replies (19)

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@gingerw

@wkidney You'll read from others here, and I echo them, that each person's journey is different, even when they are similar. It is generally understood that kidney disorders are slow-moving, and our bodies learn to adapt to the small changes as we go along. Think of if as balancing a globe or sphere, where everything works together. As you move it slightly, there are accommodations made elsewhere, so you simply do not notice it. Kidneys are alot like that! The medical community will often tell you there is no need to address lifestyle changes in Stage 3.

Way back in 2015, when I was diagnosed with my ultra-rare kidney issue, that's what they told me, too. But I decided to upgrade my lifestyle, my diet, my approach to life and make it all the best I could. My last lab work showed my eGFR at 19%, up from a low of 14%. I am monitored each month. While they are certain I will be on dialysis before too long, I will campaign to hold off as long as possible! At age 69, dialysis will be part of the rest of my life once it is started, as I cannot be transplanted. But I intend to stick around for a long time, off dialysis as long as possible ;))

Put your running shoes on, run a mile for me! And, please, let me know if I can help in any way to relieve your concern.
Ginger

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Replies to "@wkidney You'll read from others here, and I echo them, that each person's journey is different,..."

Hi Ginger, You seem awesome. Keep up the diet fight. I went wholeheartedly into the kidney diet and raised my GFRs. significantly. Problem is, since there were mistakes and a lack of coordinated response, I cannot tell what was a mistake and what is a result of radically changing my diet. Did I actually raise my GFRs or was there a series of errors? I had not eaten meat in 20 years, so the changes were not so radical, except for giving up chocolate.

You have raised your GFRs. You are inspiring.

Thank you GInger. A positive attitude is so important and I very much appreciate yours. I will run a mile for you tomorrow morning. I hope you live fabulously dialysis-free for a very long time! Thanks so much for your input!