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← Return to COVID vaccines and neuropathy
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Hi everyone.
I am hoping some of you lovely people might be able to help.
My Mum has to have open heart surgery next week, and the hospital has a strict policy around visitors being double vaccinated.
I cancelled my vaccination appointment because of my fears that my SFN would get worse. As a consequence, I am not permitted to visit Mum.
I am applying for a temporary exemption to be filed with the Australian government.
I am seeking communication with people who have had the link between worsening of neuropathy symptoms and vaccination confirmed if not suspected with their treating doctor.
The criteria for formal exemption in Australia are very narrow, so I have to put up a persuasive argument around balance of probabilities re this link. Because all of this is new, there is no substantial body of evidence that definitively shows a causal connection.
I can leave my email here but am not sure what the protocol is regarding that.
I appreciate any feedback.
Thanks,
Regards,
Sasha
Replies to "Hi everyone. I am hoping some of you lovely people might be able to help. My..."
Wished I was in Australia to visit your mum, because if she is as sweet as you are for asking this than she must be a great mum. I am double vac., w/no after affects from booster. Prayers your message reaches someone soon!
Hello @saski. I see you want to connect with others on the topic of vaccine effects so you will notice I have moved your post into an existing discussion on the topic of neuropathy and covid vaccines. Since @wwenerowicz and @melody12 have already responded to your original post and questions, I will let you reply to them.
Dear Sasha,
I had neuropathies starting again after my first doese of Moderna. The symptoms were similar to my Guillain Barre Syndrome but much lighter ,I had 6 years ago. The symptoms looked more like SFN than GBS this time. The symptoms lasted about 10 weeks. I met with 3 neurologists, 1 immunologist and several doctors. All confirmed I SHOULD NOT receive the other vaccines. NHS ENgland took all these comments on board and issued me with an exemption.
I recently had Covid, Omicron. I had it very light but my neuropathy issues came back. Lighter than the vaccine, so far. I am still monitoring.
I hope my experience can help.
Kind regards,
Nancy
Unfortunately I did have the booster last November and the following day had blood clot in my left leg by my ankle and could hardly walk . Since then there was some improvement but my feet and ankles have tingling pins and needles and ache considerably. My Internest said there could be a link to the booster and my symptoms since she has seen it in other patients . I originally started researching here on the Mayo website about the link and you might see my original post inquiring in to the possible correlation . Whatever you decide I wish you and your mother healthy success . Karin Layman
Any luck now that the huge list of pfizer vaccine side effects has been released by court order. Can't wait for Moderna side effects to be opened up.. Please let us know how things work out and prayers for your Mom.... thank you for your input,
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I don’t have a physician commentary, but I can tell you my neuropathy got significantly worse when I received the booster.
Good luck
Bill Wenerowicz