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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: 6 days ago | Replies (121)

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@hopeful33250

@sistertwo Thank you for sharing from your own personal experience. That can be a great encouragement to people who feel in the dark! How did your mother get along with Dr. Rabinstein's suggestions?

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Replies to "@sistertwo Thank you for sharing from your own personal experience. That can be a great encouragement..."

Wishing you the best.

She really liked and respected him. Throughout the years, even if he hadn't seen her for awhile, he consulted with our local doctors when we had setback. When she was being a bit impossible, we were able to say, "Remember what Dr Rabinstein said?" Sometimes I would use some of his same questions to monitor her condition.
There are people who enjoy things like puzzles and games, which help keep the mind occupied. My mom was not one of them. She was a retired nurse and enjoyed visiting with her peers (once we got her to the right facility) and she always loved dancing, even if only with her hands near the end. She claimed to have been able to feel when she had more bleeds and her balance would go way off. Having her get a lot of sleep was extremely important. We could see a huge comeback.
We feel very blessed that unlike a lot of (dementia related illness) patients, she actually got nicer and more loving, and we still thank God that she always knew who we were. Her mind was actually quite brilliant in many ways throughout her entire illness.