← Return to Cerebral amyloid angiopathy

Discussion

Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: 6 days ago | Replies (121)

Comment receiving replies
@jamestitus

My wife has recently been diagnosed with CAA although we have known for some time that there was something wrong that resulted in her processing issues. She is post-polio and there is some research to suggest that cognitive processing might be impacted by that. She also has processing issues in her family history so it is not surprising that she might experience similar problems.

We are quite comfortable with our local neurologist but he does not have much experience with CAA. He indicated that he was unaware of any treatment available for CAA. Web searching doesn't yield much in the way of encouragement either. I am wondering if a trip to Mayo or some other facility would be of benefit. Does anyone have experience with such facilities and would suggest that we might be well served by them? We feel as though we are groping in the dark, but it is a darkness that others have shared as well.

Any suggestions? Thank you.

Jim (and Gail)-Bluffton, SC

Jump to this post


Replies to "My wife has recently been diagnosed with CAA although we have known for some time that..."

When my mother was diagnosed by Dr Rabinstein (MN Mayo) with CAA we found his knowledge extremely helpful and encouraging. There are things you can do to slow the progression down and some activities that could be helpful. Wishing your wife and you the very best.