← Return to Allodynia: Anyone else sensitive to touch?

Discussion

Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Aug 30 5:28am | Replies (148)

Comment receiving replies
@mindfulness

Thank you so much, John, for sending the video. It was very interesting. We called the Pain Rehab Center in Jacksonville today to see if we could sign my husband up but were told there is a wait list of 2 years! If anyone has suggestions for a physician who works with allodynia patients or any other materials you can share, please let me know. We would really appreciate if you could share that with us. We are desperately trying to find out more about this and how to treat it. Thanks again!

Jump to this post


Replies to "Thank you so much, John, for sending the video. It was very interesting. We called the..."

Two years, that’s outrageous. Why can’t they hire at least another physician. It bad enough dealing with this stuff than have to put up with that.

@mindfulness Hello there, I'm Rachel, it's nice to meet you. I'm grateful @johnbishop shared Dr. Sletten's video on Central Sensitization, and I'm happy it resonated with you and your husband.

I'm very sorry your husband is dealing with pain from Allodynia and all of the side effects from meds in trying to control it. As you learned, CSS is an umbrella to many chronic conditions, including Fibro and Allodynia. Once upregulation of the Central Nervous System and/or Peripheral Sensory System of motor and sensors occur, it can become a snowball effect, as you're finding out. How long ago was your husband diagnosed with Fibromyalgia? Do his doctors conclude Allodynia has resulted from Fibromyalgia? My local doctors did not know how to treat my various neurological conditions either. What I learned was that these conditions require more than medications, they need a long term management plan. That plan consists of therapies to help you respond to pain in a different way and learning strategies to live with chronic symptoms.

I understand your frustration of learning there is a 2 year waiting list at Jacksonville Pain Rehabilitation Center. I waited a while, but not 2 years. Minnesota and Arizona also offer the program. Might you consider trying those locations?