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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: 6 days ago | Replies (121)

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@surf362

I share your caution about stem cells and at the time I did my best to find a cure or at least something to extend my wife's life span. The reason I chose stem cells is that a Biotech company from Korea went thru clinical studies in Japan and has been given permission to do stem cell treatments to cure Alzheimer's by the Japanese version of the FDA in Japan. Their plan of attack is to inject the body with 200 million stem cells every two weeks for 10 treatments. To do this you need to culture and grow your own cells and then reinfect them into your body. The FDA will not allow you to do this, because they say that if the stem cells are altered in any way then they are a drug and need to be approved by them. Thats why we have to go to Mexico to have the injections. The biotech company is one of a few companies who can culture and grow cells in the USA. Also this was the last ditch effort on our part because at the time we did not know of the program at the Mayo and had nothing else to loose. We felt that if the culprit is amyloid plaque, the stem cells won't care where the plaque is and could just go after the plaque in her arteries. We are closing in on the window that the stem cells start to take effect and if she shows improvement then I will post her good news.

You are right that many stem cell companies are scam's but that is more likely because of the restraints by the FDA. We found a way to get around it. I am sure that there is much stem cells can cure and we hope CAA is one of them.

I am glad to hear of your progress and I printed this for our doctor. The question I am asking is what help can Mayo offer? Everyone I contact said that know very little about CAA and that there is nothing they can do. I am hoping that someone will give me more details about the treatment's Mayo has to offer. Also which doctor they use and we will make an effort to visit him/her in the future.

This is a great forum and I look forward to more replies.

Sincerely

Terry

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Replies to "I share your caution about stem cells and at the time I did my best to..."

My mom was diagnosed over 10 years ago and although parts of her cognitive thinking has worsened (she's 82), she was in worse shape 10 years ago than she is now. Mayo (MN) also said there is not much that can be done, but I'm sure they'd be impressed she is doing so well. Good sleep makes a big difference. Best of luck for your wife.