I’m so sorry you are going through this, it sounds a lot like what I have been through fir the last 35 years.
Have they tested you for for pancreatic insufficiency? If not, might want to read up on it. I was misdiagnosed until last year. I am on enzyme replacement therapy and it has made a huge difference.
I hope this helps I some way with your journey to health. I rooting for you! Never give up!