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I have been diagnosed, at Mayo, Rochester as having CAA. I was told that I have a ten percent chance of having a bleeding stroke each year. Not cumulative. I must try and keep my blood pressure as low as possible and never take any sort of blood thinner, including baby aspirin. As you may know CAA is an incurable disease causing blood vessels in the brain to become weakened because of protein (amiloid) in them.
Replies to "I have been diagnosed, at Mayo, Rochester as having CAA. I was told that I have..."
Awesome!
My mom was diagnosed there 10 years ago, and overall is still doing quite well. When she has had more bleeds, we can usually get her back to her new normal with a lot of rest for 2-3 weeks. Some of her cognitive thinking is off, but in other areas, she can articulate things almost better than before. She is losing more control of bathroom needs, especially at night, and requires a lot of supervision. She loves to travel and rarely do people realize that she has any side affects, other than virtually no use of her left hand. Best of luck to you.
Thanks for the report good to hear that the small bleeds don't completely take away all the functions of a person at once!
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Hi Just to put your mind at ease My wife had 2 major bleeds last spring about a month apart but has been fine for almost a year.Has returned to almost normal!!
Blessings
Biff