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Livedoid vasculopathy

Blood Cancers & Disorders | Last Active: Sep 4 2:30pm | Replies (253)
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@cwhorton

I have a history of blood clots and I’m on warfarin. I have livedoid vasculitis and continue to have out breaks with ulcers on my ankles. I have used Urgotul which helps but when I have an issue have to use Drawtex. Is there anything to put on red, itchy skin to avoid another outbreak and how do you prevent them with warm weather in Florida? Cwhorton

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Replies to "I have a history of blood clots and I’m on warfarin. I have livedoid vasculitis and..."
Colleen Young, Connect Director | @colleenyoung | Mar 13, 2022

Hi @cwhorton, welcome. Allow me to tag fellow members like @msmerry @ykh128 @yoan02 @ruthnz @zenk @patientrea @cleverrover, who have experience with livedoid vasculitis and can share their experiences with you and their tips for avoiding outbreaks and dealing with warm weather.

You also asked about what kind of doctor to see. Livedoid vasculopathy is complicated. At Mayo Clinic, experts work together from multiple departments to treat those with LV. You can read Cheryl's story here as one example:
- Surprise Diagnosis Spurs Learning Curve, Search for Help https://sharing.mayoclinic.org/2015/11/25/surprise-diagnosis-spurs-learning-curve-search-for-help/

CWhorton, have you consulted with a hemotologist and a dermatologist?

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