I just joined this site. My husband ( a very fit, active age 68) had a very large ICH in his right occipital lobe, also bleeding into his temporal & parietal lobes on 01/27/18. Was sitting at his computer & vision just went completely blurry; had been having headaches for about a week. He had been having cognitive/memory issues for the past 2 years. Took him to ER thinking detached retina, because no typical signs of stroke. He was in ICU 5 days, neuro step down 6 days & then at a rehab hospital for 2 weeks. He came very close to death in ICU (unresponsive for 36 hours, very labored breathing, eyes fixed when a light was shown in his eyes), total left side neglect by day 3, has lost the left side of his vision in both eyes & has significant memory & cognitive processing issues. Physically, he has come back almost completely...was riding a horse last weekend! He still has significant memory, vision & mental processing problems & is in outpatient rehab. Can't drive & doubt that he ever will again. He had a post release MRI with & w/o contrast, with multiplanar, multisequence imaging. It showed that he still had some residual blood in the occipital lobe, swelling had gone down, some other things that were over my head in my understanding & it did show about 5 spots of prior microbleeds. From all this, the neurology nurse practitioner we saw deduced (perhaps with the help of her supervising neurologist?? I don't know) came up with a "85-90% sure" diagnosis of CAA. I have tried to get a 2nd opinion from Dr. Steven Greenberg, who runs a research lab on CAA in Boston, by having him just review husband's scans & records, but was told he doesn't do that unless he sees the patient in person. Makes no sense to me since the only way to diagnose is to look at scans, records & history. I am trying to find someone who will give me a second opinion & if at all possible, tell me more about what to expect in terms of future bleeds, longevity, the stage he is in this process (ie, does he have a mild, moderate, or severe case of CAA??), did the locals give him the right kind of MRI to see all microbleeds or does he need a PET scan or something else, and anything else that would be helpful. I was hoping someone here could let me know if they have found anyone who will/can do this, without seeing him & just doing a review of his records & scans. Any assistance anyone (members, moderators or doctors) can offer would be greatly appreciated. Thanks