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Cerebral amyloid angiopathy

Stroke & Cerebrovascular Diseases | Last Active: 6 days ago | Replies (121)

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@gbiffart

Hi That’s understandable.How old is your wife?Has she had a bleed or Just an MRI diagnosis? I have just tried to love and care for my wife and do more things together!Appreciate every day!!Blessings

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Replies to "Hi That’s understandable.How old is your wife?Has she had a bleed or Just an MRI diagnosis?..."

Bless your heart. My mom had/has clusters of bleeds. Her Mayo doctor told us that the best medicine for her was to use her brain, like puzzles, games, cards, etc. to keep it sharp. She doesn't (never did) like any of that stuff. He also told her dancing was very good for her (balance). He said spending time with her peers was also very good for her. That is the main reason we put into Assisted Living (after more bleeds 4 years ago) where they have every amenity imaginable. Unfortunately she doesn't take advantage of many of the extras. For the most part, most people would never know Mom has a brain issue. She can talk to anyone about anything and appear 100% normal. Her weak areas are not knowing a box of Girl Scout cookies isn't $300.00. Not always knowing day and times. She has little to no strength in her left hand and when she gets tired she walks towards the right. She may even walk into the wall. But, that is a sight and balance issue. Other days she can have a very purposeful walk, straight ahead. Her cognitive thinking can be challenging at times. She always thinks people are stealing from her. She used to fiddle (obsessively) with things like the door lock, garage door opener, clothes washer, thermostat, etc. Dressing sometimes can be a challenge. At times her dining skills are not too good, mostly because of her site. But, I have seen her eat coleslaw with her hands. I got her special spoons (larger and bends to the side) that the Assisted Living sets for her now, and they cut up her food to manageable sizes for her. The most important thing we find is the importance of her getting a good amount of rest at night. She is on a low dose sleep aide, which has been helpful. It was usually late at night when she would do some crazy things, like tear apart every drawer, think she saw a kid in her room playing, etc.. Honestly though, she has been much better for a much longer time than we anticipated ten years ago. Everything is manageable. She loves to go places, so we take her to concerts and out as often as we have time for. We just don't take her shopping too much. She wants to buy "EVERYTHING!" Next Thursday when I take her to get her hair done, I'll have to discreetly discourage the salon from allowing her to spend $500 on shampoo she doesn't need. Friday we will take her to see a country music singer. She loves concerts! No one will know this beautiful woman has a brain issue.

hi she only 72 and has been a caretaker most of her life hope i'm now able to take care of her she has not had a bleed yet trying to learn all i can thanks for the reply god bless

that was very insightful hope i have the amount of courage as you. thanks and god bless