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Allodynia: Anyone else sensitive to touch?
Neuropathy | Last Active: Dec 23, 2023 | Replies (136)Comment receiving replies
Welcome @mindfulness, I can't imagine how difficult it must be to have thermal allodynia and not get any relief. I posted the following article earlier in this discussion that might be helpful. It's an older article from 2014 — Immersed: How I Found a Way (After Decades of Trying) to Help My Allodynia and Nerve Pain: https://www.healthrising.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/
I also found some information that mentions the condition may result from central sensitization. @rwinney may be able to share her thoughts on central sensitization and pain management that might be a treatment option.
"Allodynia is thought to be a hypersensitive reaction to stimuli. Research suggests it may result from central sensitization, which is believed to be an underlying mechanism of fibromyalgia, ME/CFS, and several other conditions.1 "Central" indicates the central nervous system (brain and spinal cord) and "sensitization" means that it's become extra sensitive." --- Allodynia: A Rare, Distinct Type of Pain in Fibromyalgia and ME/CFS: https://www.verywellhealth.com/allodynia-definition-and-types-fibromyalgia-715929
Has any of his doctors discussed pain management as a possible option to help?
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Hi John,
Thank you for your response and suggestions. What kind of pain management are you referring to? Medication? My husband has tried various medications for fibromyalgia, but he is so sensitive to medications, he is not able to tolerate the side effects which cause additional problems for him, such as insomnia, digestive upset, nausea and sedation, without significant relief of symptoms. Do you know of any doctor or clinic that specializes in treating symptoms of allodynia? We live in the Washington DC area and sadly have not been able to find someone who has deep knowledge of allodynia. We are also wondering if there is an allodynia association that might be a resource. It is so sad to see people suffering from this with not much information on how to treat it. Thanks again, John.