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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Dec 23, 2023 | Replies (136)

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@mindfulness

Hello. My husband is really suffering. He has fibromyalgia and developed thermal allodynia over the last couple of years. He has symptoms when it is cold (even in the house) and when he sweats. Winters here in Virginia are very cold, so it has made life very difficult. We have been to multiple doctors, primary care, rheumatologists, etc., but surprisingly no one really has a very good understanding of allodynia. My husband tried medications that are supposed to help but they did not help too much and he could not continue with them due to side effects/sensitivity to medication. Couple of questions: Does anyone know of a doctor with knowledge and experience with allodynia? Also has anyone had any success with Aleve or any other medication that can help his thermal allodynia? Does anyone know about a doctor/practitioner who does desensitization techniques for thermal allodynia? Is there a good book about allodynia that has more information? We are willing to go anywhere. We need something that works and would very much appreciate your input. We are desperate. It is so difficult to see my husband suffer 24 hours a day, even though we keep the house at 80 degrees.

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Replies to "Hello. My husband is really suffering. He has fibromyalgia and developed thermal allodynia over the last..."

Welcome @mindfulness, I can't imagine how difficult it must be to have thermal allodynia and not get any relief. I posted the following article earlier in this discussion that might be helpful. It's an older article from 2014 — Immersed: How I Found a Way (After Decades of Trying) to Help My Allodynia and Nerve Pain: https://www.healthrising.org/blog/2014/06/15/immersed-found-way-decades-trying-help-allodynia-nerve-pain/

I also found some information that mentions the condition may result from central sensitization. @rwinney may be able to share her thoughts on central sensitization and pain management that might be a treatment option.

"Allodynia is thought to be a hypersensitive reaction to stimuli. Research suggests it may result from central sensitization, which is believed to be an underlying mechanism of fibromyalgia, ME/CFS, and several other conditions.1 "Central" indicates the central nervous system (brain and spinal cord) and "sensitization" means that it's become extra sensitive." --- Allodynia: A Rare, Distinct Type of Pain in Fibromyalgia and ME/CFS: https://www.verywellhealth.com/allodynia-definition-and-types-fibromyalgia-715929

Has any of his doctors discussed pain management as a possible option to help?